June is Scleroderma Awareness Month

June is Scleroderma Awareness Month

WHAT IS SCLERODERMA? Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body. Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the l

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Christine Miserandino featured in Scleroderma Voice Magazine Summer Edition

Christine Miserandino featured in Scleroderma Voice Magazine Summer Edition

It was an honor to be interviewed by Christina Relacion from the Scleroderma Foundation for their Summer edition of Scleroderma Voice magazine. It is a true testament to the fact that "The Spoon Theory" now has a much wider audience then just lupus patients as I originally thought. The chronically i

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Sick Humor:

Sick Humor: “Re-Finding” The Funny

We have forgotten how to laugh. There. I said it. Not that I can blame a single one of us. Let’s face it, when you wake up, throw your leg off the bed and hear it echo in the room like a creaking door in a 1950’s horror flick, the giggle factor isn’t really at an all time high. I don’t th

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Kama Sutra Massage Oil: My Beauty Secret For Dry Skin

Kama Sutra Massage Oil: My Beauty Secret For Dry Skin

When one hears Kama Sutra Massage oil, one might think of hot monkey love. Not me. I think ahh soft hands and feet and relief to my reptilian scaly dry skin. I have Scleroderma and my most severe symptom since 1992 had been Raynaud's. Raynaud's causes the sympathetic nerves surrounding blood vess

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Paying People To Stay Home

Paying People To Stay Home

We don’t appear sick enough and I hear many complain about paying people to stay home.  That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits.  Yes, this girl f

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