Spoonie question of the day: Have you ever been mistreated, or made to feel uncomfortable because your disease or disability was invisible or not obvious?

How did you handle it? Did you choose to keep quiet and ignore it? Did you speak to that person or ask to speak to a manager? If you wrote a letter or said something- please share here in the comments section some of your wording. Many people can't find the right words, but maybe if we all share

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Paying People To Stay Home

Paying People To Stay Home

We don’t appear sick enough and I hear many complain about paying people to stay home.  That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits.  Yes, this girl f

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When You're Not Sick Enough

When You’re Not Sick Enough

Before I even get started with this article, let me state for the record, that for those who have been approved for short or long term disability, you deserve it. You’ve suffered just as much, if not more than any of the rest of us and I do not begrudge you a thing. In fact, I understand that it�

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Assistive Devices: An Emotional and Physical Journey

Assistive Devices: An Emotional and Physical Journey

Disability. Disability is an evil, nasty word that many people cringe at, because it means that you may not be able to do something you possibly once loved, either at all, or possibly unassisted. For me, it took a decade to emotionally and mentally accept that I’m partially disabled. Only a mon

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Book Review: The Ultimate Guide to Sex and Disability

Book Review: The Ultimate Guide to Sex and Disability

I’ve been wanting to read this book ever since I first saw it for sale on a website I was already buying from and I couldn’t resist getting it. I found it to be a very interesting read and since it is extremely well written and laid out, it was also an easy read. Potentially tricky subjects are

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Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

I recently flew to New Zealand for a few weeks of vacation. My first REAL vacation since I was say 7? I was so excited. I packed up, got all my gear, made sure everything was set. I have been flying alone since I was 15. I knew the drills, even with all the new protocols, I could navigate this hell.

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Traveling Thoughts Through a Different Set of Eyes

Traveling Thoughts Through a Different Set of Eyes

A teenage girl was rolled in a wheelchair out to the plane in front of the other passengers, picked up and fireman carried up the steps into the plane and placed in her seat. All the time she and her travel companion had a big smile. They thanked the worker who carried her and sent a smile to the li

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Handicap Parking and My Invisible Illness

Handicap Parking and My Invisible Illness

I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a cane, but most of the times I don’t need it. I have a handicapped parking tag hanging on the mirror of my car. I park in handicapped spots. However, I get nasty looks when I get

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Tip: Access Pass: A Free Pass for People with Disabilities (US)

Tip: Access Pass: A Free Pass for People with Disabilities (US)

Access Pass: A Free Pass for People with Disabilities With spring coming, now is the time to get out and see some of nations parks. If the nicer weather wasn't incentive enough... how about because it is free for those with disabilities? The Access Pass is a special permit for people of any ag

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