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The U.S. FDA Arthritis Advisory Committee voted 13 to 2 to recommend approvalof the treatment developed by Human Genome Sciences (HGS) and GlaxoSmithKline Tuesday, November 16, 2010 The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations are pleased wit
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Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods. Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s
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Hi Everyone, If you are anything like me you forget things easily. So I started a habit when twice a year on daylight savings day, not only do I use the time to obviously set our clocks back one hour. But I use this as a reminder for a "1 hour" check of myself, and my home etc. too. Only spe
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Back in June I received a facebook message that changed my life. My friend from high school, Jessica Glazer, sent me the following: “I have an idea I want to talk to you about. I was thinking of having a party to raise money to contribute to your Lupus fundraising efforts. It could be a pla
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With today being election day all over the country, it is important to remember that Spoonies must be our own advocates when it comes to getting help from our government in fighting our illnesses. It is imperative that we take it upon ourselves to increase awareness about the need for funding for
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On November 16, 2010, the Food and Drug Administration (FDA) will hold a hearing to discuss the application to approve BENLYSTA® (belimumab) as a treatment to reduce disease activity in adults with active, autoantibody-positive lupus. If approved, BENLYSTA® will be the first drug to be specif
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Product Recall: On October 19, 2010 McNeil Consumer Healthcare, the company behind Tylenol, has issued a voluntary recall of 128,000 bottles of Tylenol 8-Hour caplets after receiving a small amount of complaints of a musty odor smelled upon opening bottles. Tylenol has narrowed such smell to the wo
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Hey Spoonies, Just for today try and let go of anger and hold on to happiness. Sometimes I need to be reminded to "loosen my fists" and when I do, I read this quote: "You can't shake hands with a clenched fist." -- Indira Ghandi Love and spoons, Christine
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Christine Miserandino, founder and owner of the online magazine and support system, butyoudontlooksick.com will be the keynote speaker at the Lupus Foundation of America, Georgia Chapter’s Annual Lupus Symposium. Christine, who has been living with Lupus for over 15 years is a nationally recogni
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We all have been there. It is 2am, you can't sleep, you have a lot on your mind... and let's face facts- you are depressed. After doing all of the wrong things to combat depression, I thought I would pass on some of my knowledge to you. Hopefully you can find better things to do with your time at 2a
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
