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I have always been a big proponent of calling a ‘spade a spade’ and telling it like it is. I don’t want things sugar coated or watered down to make them sound nicer or less scary. Give it to me straight or not at all. This belief was reinforced during my last doctor’s visit. I had been
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“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to
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National Multiple Sclerosis Awareness Week is March 14-20. Multiple Sclerosis (MS) is a chronic, unpredictable disease of the central nervous system (the brain, optic nerves, and spinal cord). It is thought to be an autoimmune disorder. This means the immune system incorrectly attacks the person's
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Today was a lupus day. You know the ones that hit you like a ton of bricks the moment you wake up? You realize that your busy-for-a-spoonie-but-not-for-a-normal-person day yesterday has left you in a serious deficit today. Yeah…today was that day. And then I had to play “Mom” to my two youn
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I have Lupus. I am passionate advocate for Lupus Research and Education. I have been to Washington, DC twice as an advocate for “Capitol Hill Advocacy Day” but this year I will not be able to attend in person. It is expensive to travel to the East Coast and this year I was unable to make the tri
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“I’m fine.” We say those words multiple times a day. How often does anybody ever really mean them? For those of us living with invisible chronic illnesses, do we ever mean it? If we don’t mean it, then why on earth do we say it? We say I’m fine because it’s what’s expected of us, be
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March 9, 2011 – I will remember this day, Benlysta was approved and hope was born. I will never forget the day I was diagnosed with Lupus. That was 18 years ago, and I am now 33. For those of you doing the math, that means I have had Lupus over half my life. Right now Lupus is incurable, so I exp
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FDA approves Benlysta to treat lupus First new lupus drug approved in 56 years The U.S. Food and Drug Administration today approved Benlysta (belimumab) to treat patients with active, autoantibody-positive lupus (systemic lupus erythematosus) who are receiving standard therapy, includi
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This week, March 6-12, marks National Patient Safety Awareness Week. This initiative is sponsored by the National Patient Safety Foundation which was founded in 1997. The goal of this foundation is to improve the safety of care for patients by providing information and education to healthcare provid
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Endometriosis (endo) is a reproductive disease that affects an estimated 176 million girls and women worldwide. The cause is unknown and there is no cure. Symptoms vary from woman to woman, making it a very confusing disease to understand, live with, and treat. Symptoms can include painful period
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
