Recently, one of my doctors asked me how my many health issues affect my every day life? The first two words to pop into my head? “All encompassing.” And it’s true. My health issues affect almost every decision I make each day: what am I going to wear today, dress for comfort, hair in a pony t
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As a patient living with lupus, I must say that the various flavors of symptoms is often the hardest to cope with. Every month I experience something completely new that leaves my doctors gaping in disbelief as to whether I'm making it all up. As if! The latest offender has been my scalp. Whene
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Pillboxie is new application (app) that offers a simple way to remember to take your medications. The design is clean and user friendly, something I’ve found lacking in a lot of otherwise useful apps. Jared Sinclair, RN, developed Pillboxie. Sinclair seems to genuinely care about people and is ver
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1. They know each others' favorite hospital meal 2. The smell of disinfectant becomes a turn on 3. They exchange bodily fluids by dumping each other's urine containers 4. Gripper socks become part of the lingerie wardrobe 5. The only jealousy had is of IV-friendly veins 6.
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Nearly everyone carries a cell phone and while for some it’s just something they use everyday, for me it has been my sanity saver. My husband surprised me with an Android Epic two weeks after my shoulder surgery and I will never go back to another kind of phone. Since we use Sprint the Epic came t
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I am a hair accessory addict. I own every kind of hair accessory. When I was younger, I swore I would always leave the house looking “presentable”. I would not just throw my hair in a pony tail. Not that there’s anything wrong with a well-coiffed pony tail, but they were not for me. The
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Eating disorders affect more than 10 million people in the United States. Types of eating disorders include anorexia nervosa, bulimia, and binge or compulsive eating. More recently, there has been an emergence of new disorders of diabulemia and orthorexia as well as the coming together of eati
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Today, Monday, February 28 is Rare Disease Day 2011. A disease or disorder is defined as rare in the US if it affects less than 200,00 people. The National Organization for Rare Disorders (NORD) is the mobilizing force behind this day recognized around the globe. This year, their focus is on “
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Recently, it has been suggested to me that because I am receiving treatments regularly, the treatments mean that I’m not really sick. The assertion is that on treatment, I lead a “basically healthy” life and that I am “pretty normal”. Well, let’s go ahead and examine this idea of norma
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“Is this gluten free?” Loaded question? You betcha, especially when posed by the smallest and most finicky person sitting at my breakfast table. My second gluten free product review is going to get a pretty high scoring from me again, but don’t start thinking that I hand out spoons too easi
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
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I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
