We've all had to give up many things since becoming 'professionally chronically ill'. Slinky dresses maybe? High heels? Pantyhose or Tights? Pants? But the thing out of all of the things I've missed having daily since getting sick, is my bra!! My body is too swollen & tender to be able to be
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1. PC Sticky Notes – I keep a relatively icon and uncluttered desktop with one exception: PC Sticky Notes which came with Windows 7. On my ipad, I use Infinote. These come in handy to keep track of appointments, write down book titles or website names, homework assignment, to do lists, or random n
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I feel as though I spend all of my time trying to get my spoonie-self heard. I wear my spoon pin to work- every day. I remind friends, family, co-workers about treatments and such. On the days when I call in sick to work or cancel a social function, I remind these people what I am dealing with. You
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“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to
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Today was a lupus day. You know the ones that hit you like a ton of bricks the moment you wake up? You realize that your busy-for-a-spoonie-but-not-for-a-normal-person day yesterday has left you in a serious deficit today. Yeah…today was that day. And then I had to play “Mom” to my two youn
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I have Lupus. I am passionate advocate for Lupus Research and Education. I have been to Washington, DC twice as an advocate for “Capitol Hill Advocacy Day” but this year I will not be able to attend in person. It is expensive to travel to the East Coast and this year I was unable to make the tri
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“I’m fine.” We say those words multiple times a day. How often does anybody ever really mean them? For those of us living with invisible chronic illnesses, do we ever mean it? If we don’t mean it, then why on earth do we say it? We say I’m fine because it’s what’s expected of us, be
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This week, March 6-12, marks National Patient Safety Awareness Week. This initiative is sponsored by the National Patient Safety Foundation which was founded in 1997. The goal of this foundation is to improve the safety of care for patients by providing information and education to healthcare provid
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Endometriosis (endo) is a reproductive disease that affects an estimated 176 million girls and women worldwide. The cause is unknown and there is no cure. Symptoms vary from woman to woman, making it a very confusing disease to understand, live with, and treat. Symptoms can include painful period
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Disability. Disability is an evil, nasty word that many people cringe at, because it means that you may not be able to do something you possibly once loved, either at all, or possibly unassisted. For me, it took a decade to emotionally and mentally accept that I’m partially disabled. Only a mon
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
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Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
