Most of us have them and some of us even forget where they are due to the lovely fog that comes with Fibromyalgia and other conditions! I currently have five different locations that I stash emergency Spoonie supplies. 1. My nightstand is the primary place where I keep all of my medicines. I norm
[ 21 comments ] | [ read more ]
We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had
[ 39 comments ] | [ read more ]
Every month has awareness about something, sometimes several things. April is no exception. April is the awareness month for Autism, Child Abuse, STD’s, IBS, Parkinson’s, Rosacea, and the list goes on and on. I am going to talk about one that is not often heard of, Sjögren’s Syndrome. Accordi
[ 18 comments ] | [ read more ]
April is Primary Immunodeficiency Awareness Month. Primary Immune Deficiency Diseases (PIDDs) are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. The most famous case is “The Boy in the Bubble” story. In the US, there are an estimated 250,000
[ 8 comments ] | [ read more ]
As a Lupus patient, the Jewish holiday of Passover (which this year starts on the night of April 18) is one that resonates with me. It is the holiday that retells the biblical story of Exodus where the Jewish slaves overthrew the Egyptian pharaoh. Moses led the Jews on a journey through the desert t
[ 8 comments ] | [ read more ]
One thing you should know about me is that I LOVE Sex and the City. When it was on HBO, I watched it religiously. I saw both of the movies on opening weekend, of course. I own all of the DVDs. And now that the reruns are on E!, my household stops at 8pm EST week nights. Don’t call me during that h
[ 7 comments ] | [ read more ]
I would say a muffin mix is an extreme hit when your kids are requesting you make it for the third time in two weeks. When you make an excuse to stop at the grocery store so you can pick up another box, you know you love it just as much! I had noticed King Arthur Gluten Free products popping up i
[ 6 comments ] | [ read more ]
“You are going to stick what where and then put electricity through it to help my pain levels?” was my first reaction to a tens unit when used during physical therapy. The idea of putting patches with electrodes on my shoulder or any where on my body and then running electricity through it for f
[ 33 comments ] | [ read more ]
We don’t appear sick enough and I hear many complain about paying people to stay home. That $1037.00 I receive in disability benefits has been a dream of mine since I was 15, when I got my first paycheck from Taco Bell and saw my deduction for Medicare and disability benefits. Yes, this girl f
[ 56 comments ] | [ read more ]
When you have had a chronic illness for some time, particularly if specific parts of your body are affected, you tend to become an expert on that area. Some of us end up becoming so educated about our ailment that we practically qualify for our own medical degree. But how much do you know about the
[ 5 comments ] | [ read more ]
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
