When one hears Kama Sutra Massage oil, one might think of hot monkey love. Not me. I think ahh soft hands and feet and relief to my reptilian scaly dry skin. I have Scleroderma and my most severe symptom since 1992 had been Raynaud's. Raynaud's causes the sympathetic nerves surrounding blood vess
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Recently, I needed some physical therapy. I had a torn core muscle, nothing too serious. The Physical Therapist asked me, “So, you’re young and healthy, right?” Um, NO. I handed him my large excel spreadsheet that I have with me at all times listing my medications, conditions, hospitalization
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To be separated Body and mind Split between thoughts of love And questions for the enemy Yet they both reside In the same body In my body There are no answers Just community A family of people like myself Found here Yet spread all around the world Provide strength
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“Your cells react to bacteria and viruses differently than mine. You don't get sick, I do. That's also clear…We're on the same curve, just on opposite ends.” Elijah Price, “Unbreakable.” I want to introduce you to my brother Justin. He’s three years younger than me; same parents, same
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How can a simple walk make me find a place where I fit, where I’m not looked down upon for the team of medical specialists I have on board or the number of ailments I battle? It surprised even myself as I thought I wouldn’t be able to find that community outside of the “box” but found it I
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With most couples in a long-term love relationship, whether or not they are married, the phrase "in sickness and in health" conjures up images of short-lived ailments like the flu, or perhaps helping each other in old age after multiple healthy decades together. Not many anticipate or have any g
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So, are you looking to let your Spoonie flag fly? Are you looking for a way to advertise your Spoonie-ness, or are you just looking for an elegant way to quietly remind yourself that you’re a Spoonie while still looking fabulous? Or better yet, are you a supporter of a Spoonie and you want to give
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I used to wish that I knew someone that was both famous and a Lupus patient so that they could shine a spotlight on Lupus Awareness in a way that I cannot. On Tuesday May 3rd, Toni Braxton will show her true strength and courage on an all new “Braxton Family Values” , as she reveals to her fam
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If you’re a spoonie you know that our lives are often times filled with more doctors’ appointments than we’d like. If you’re a mother you know that dragging kids to those war zones appointments can be more daunting than hiking to the bottom of the Grand Canyon, and equally as challenging as
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I didn't know back then that life would change forever. I didn't know what pain was then. I didn't know the sacrifices and allowances I would end up making. I didn't know my hair could hurt. I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
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