Seeing the doctor is rarely what I would call fun. You are usually there because you don't feel well and you usually fall into the following categories: Having a diasnosis you thought you had walking into a door- and possibly seeing a new doctor for a 2nd opinion, or a treatment/ investigation of s
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What a great fundraiser! The Lupus Alliance of America, Long Island Queens Affiliate is Raffling off tickets to win an autographed guitar by Lady Gaga, to help raise funds to care for those living with lupus and to fund research into the cause and cure.he Lupus Alliance of America, Long I
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ROCKVILLE, Md.--(EON: Enhanced Online News)--Human Genome Sciences, Inc. (Nasdaq:HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus er
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Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker for the Piedmont, NC chapter of the Lupus Foundation. This is the 10th annual Lupus Summit on September 11th. The deadline to order tickets is September 1st-- so act now! Link to order your tickets is below. She wi
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UPDATE: You may continue to upload photos to our gallery, however photos uploaded after August 25th, 1:00am EST will not be considered eligible for contest prize consideration. Photos uploaded after August 25th may still be featured on our site, or included in any future media related to this c
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I am happy to announce that the butyoudontlooksick.com facebook fan page has OVER 18,000 fans! I can not even type, or say that number without being amazed, thrilled, happy and humble. Thank you to everyonewho has "liked" our page and then, shared this page with their friends! If you are on faceb
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Yes I said it! The BIC brand XXL pen is the best pen I have ever used! I always like to share good things I find with you and this is certainly one of them! Having Lupus and carpel tunnel causes me great pain when I write, but as you know... I am a writer. You might think that I type since you ar
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I recently flew to New Zealand for a few weeks of vacation. My first REAL vacation since I was say 7? I was so excited. I packed up, got all my gear, made sure everything was set. I have been flying alone since I was 15. I knew the drills, even with all the new protocols, I could navigate this hell.
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Thank you to AmericanCatholic.org for mentioning my essay "The Spoon Theory" in My Life With Multiple Sclerosis By Susan Hines-Brigger. We Just became aware of this article although it was published May 2010. Susan wrote an amazing article about living with MS and some lessons she has learned alon
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A teenage girl was rolled in a wheelchair out to the plane in front of the other passengers, picked up and fireman carried up the steps into the plane and placed in her seat. All the time she and her travel companion had a big smile. They thanked the worker who carried her and sent a smile to the li
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
