A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th
[ 29 comments ] | [ read more ]
Hi Everyone, If you are anything like me you forget things easily. So I started a habit when twice a year on daylight savings day, not only do I use the time to obviously set our clocks back one hour. But I use this as a reminder for a "1 hour" check of myself, and my home etc. too. Only spe
[ 5 comments ] | [ read more ]
Back in June I received a facebook message that changed my life. My friend from high school, Jessica Glazer, sent me the following: “I have an idea I want to talk to you about. I was thinking of having a party to raise money to contribute to your Lupus fundraising efforts. It could be a pla
[ 3 comments ] | [ read more ]
On November 16, 2010, the Food and Drug Administration (FDA) will hold a hearing to discuss the application to approve BENLYSTA® (belimumab) as a treatment to reduce disease activity in adults with active, autoantibody-positive lupus. If approved, BENLYSTA® will be the first drug to be specif
[ 4 comments ] | [ read more ]
Product Recall: On October 19, 2010 McNeil Consumer Healthcare, the company behind Tylenol, has issued a voluntary recall of 128,000 bottles of Tylenol 8-Hour caplets after receiving a small amount of complaints of a musty odor smelled upon opening bottles. Tylenol has narrowed such smell to the wo
[ no comments ] | [ read more ]
Hey Spoonies, Just for today try and let go of anger and hold on to happiness. Sometimes I need to be reminded to "loosen my fists" and when I do, I read this quote: "You can't shake hands with a clenched fist." -- Indira Ghandi Love and spoons, Christine
[ 4 comments ] | [ read more ]
We all have been there. It is 2am, you can't sleep, you have a lot on your mind... and let's face facts- you are depressed. After doing all of the wrong things to combat depression, I thought I would pass on some of my knowledge to you. Hopefully you can find better things to do with your time at 2a
[ 58 comments ] | [ read more ]
It was a dream come true for me to personally meet Christine after reading “The Spoon Theory” a little over a year ago. It was one Sunday morning when my adult daughter, Carly carried in her laptop to the kitchen table where I was reading the Sunday paper and told me to read “The Spoon Theory.
[ 16 comments ] | [ read more ]
I have unfortunately been on both sides of this article. I have spent time visiting friends and family when they have been sick, but I have more often been the patient everyone is visiting. Many of the visits went very well, but unfortunately others didn’t go so well for them or me. Hopefully my m
[ 78 comments ] | [ read more ]
There are a plethora of new shows which debuted during prime time on network television in September, over 20 of them in fact. Unfortunately, I stopped watching the networks this summer because I don't care for repeats or reality shows, so I missed the promos that advertised the beginning of the CW
[ 2 comments ] | [ read more ]
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
