Media & Press – Writing and Speaking Engagements

 

Christine Miserandino’s writing and speaking engagements:

  • Media: Television


    Keeping Kids Healthy : Lupus A Medical Mystery
    – Featuring Christine
    Miserandino
    Keeping Kids Healthy (PBS and American Public Television) Nationally
    Syndicated won a 2005 New York Emmy Award (11/2005) re-aired (2/2006,
    3/2006, 6/2006) EPISODE 401 – Lupus: A Medical Mystery
     

  • Online

    1/ 24/08 -Christine has been interviewed for today’s CNN.com “empowered patient” column.

    Empowered Patient, a regular feature from CNN Medical News correspondent Elizabeth Cohen, helps put you in the driver’s seat when it comes to health care. This week’s topic asks the question, “Are you an obnoxious patient?”. Christine was quoted in tips # 3, 4 and 5! Ms. Cohen was easy to speak with and it was a pleasure to work with her. I hope to again in the future as patient advocacy and empowerment is something I feel so strongly about.

    Story Highlights Be an informed, confident patient, but also listen to your doctor’s view Don’t demand a prescription without an office visit Share, but don’t overload, your doctor with info you’ve gathered independently If you need more than 15 minutes, make special arrangements beforehand

    To read the whole story:
    http://www.cnn.com/2008/HEALTH/01/23/ep.obnoxious/index.html?iref=newssearch

    2/9/07 – Christine Interviewed for

    CNN.com Blog
    on Friday, February 09, 2007 for CNN.com "Paging Dr.
    Gupta" medical/health blog.  the article was called "Handling a
    friend’s diagnosis."  It has tips for what to do when visiting
    someone who is sick.  You can read the full article

    here
    .
     

  • Print Media: Medical and Health Related Newsletters

    Emerge – Quarterly journal of CFS / ME Victoria Vol 26, No 1 Autumn 2007
    – "A Lesson in Adapting from my Dog"

    Emerge – Quarterly journal of CFS / ME Victoria Vol 26, No 4 Summer 2006

    New Jersey Chronic Fatigue Syndrome Association Spring / Summer 2006
    Newsletter

    Southern Colorado Pulmonary Hypertension Group – June 2006 Newsletter

    Bergen, NJ CFS Support Group Newsletter / April 2006 Vol. III, Issue #28

    Nationally Syndicated Column "DISABILITIES" (Week #183) "LUPUS OFTEN
    MISUNDERSTOOD" March / 2006

    Lupus Link Ontario, Volume 4 Issue 1 Winter / Spring 2006

    ButYouDontLookSick.com has been featured as a resource NorthCoast SLE &
    FMS Support Group Newsletter March 2006 – Feature story about
    ButYouDontLookSick.com E-Magazine

    NorthEast Fibro-Items Newsletter Volume 7 – Spring Issue featured
    article "Addition by Subtraction"

    Access Press, Volume 16, Number 11, November 10, 2005

    PEP Talk Newsletter September 2005

    PHA Volume 3 Issue 1 Spring / Summer 2005

    Hypoparathyroidism Newsletter June 2005

    RSDhope.org – February 2005

    Pulmonary Hypertension Association – February 2004

    Spondylitis.org – May 2004 News section – quoted "The Spoon Theory"
     

  • Print Media: Newspapers and Magazines

    Herald Community Online (February, 2005 NY) ‘She
    never looked sick
    ‘ – Personal interview and feature story

    The Valley Stream Herald (September, 2004 NY) ‘Take
    a walk for Lupus V.S. woman, family will celebrate 11th annual Lupus
    Alliance fund-raiser Oct. 17
    ‘ – Personal interview and feature story
    about fundraising for Lupus Walk

    Long Island Woman Magazine (May, 2004 NY) ‘Living
    With Lupus, A Young Woman’s Journey

    The Valley Stream Herald (February, 2004 NY) ‘‘But
    you don’t look sick’ Valley Stream woman takes steps to increase the
    public’s awareness of Lupus

     

  • Media: Speaking Engagements

    Christine Miserandino is a featured speaker for

    Invisible Chronic Illness Awareness
    Week September 10-16, 2007.

    The Lupus Alliance of America Long Island / Queens Affiliate June 2007
    "Kids and Teens" Panelist

    The Lupus Alliance of America Long Island / Queens Affiliate "Growing up
    with Lupus" Symposium June 2006

    GFWC Pocono Mountain Women’s Club – March 2005

    Phi Sigma Sigma, Hofstra University – Women’s Health and Wellness Fair
     

  • Awards Won

    4/27/08 – Lupus Gala Brunch Honoree
    Lupus Alliance of America- Long Island/ Queens Affiliate

    8/2007 –

    ButYouDontLookSick.com website has won a Hope Award 2007
    . The Hope
    Award is given to websites that offer positive support and encouragement
    to people suffering from chronic illnesses, and is awarded by
    IBSTales.com, a site for irritable bowel syndrome sufferers.

    8/2007 – ButYouDontLookSick.com is a winner of one of

    HealthCentral’s 2007 Top Sites Awards

    7/2007 – ButYouDontLookSick.com has been listed as number 54 on
    EDrugSearch.com Healthcare 100 – The world’s top blogs on health and
    medicine.

    11/2006 – ButYouDontLookSick.com has been selected as the website of the
    week by LongIsland.com.

    11/8/2005 – KSDK News Channel 5 "Website
    of the Day
    "

    11/7/2005 – WKKG 101.5 Indiana Country Radio featured "Website of the
    Day"
     

  • Blogosphere

    We at butyoudontlooksick.com are proud to be mentioned frequently in the health and medical blogosphere. We can not list all entries, but below are some noteworthy posts.

    1/22/08 Grand Rounds medical blog host

    1/4/08 Thanks to Amy Tenderich at Diabetesmine.com, who wrote an article called “Life, by the Spoonful” where she talks about living with Type 1 Diabetes and uses “The Spoon Theory” to talk about her life and the daily management of her disease.

    1/4/08 At Dlife.com, Amy also mentions us in her weekly column called “Straight up”. This week she talks about explaining the demands of living with a chronic illness in an article called “Counting Spoons“.

Comments are closed.