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We have reached OVER 119,000 likes on our facebook page! Come join our #spoonie community!

We have reached OVER 119,000 likes on our facebook page! Come join our #spoonie community!

    WHoooo HHhhoooo!!!  Do a happy Dance! We have reached OVER 119,000 fans/ likes on our ButYouDontLookSick.com facebook fanpage! Thank you to all our readers, friends, and "spoonies" for making every part of our online community as supportive as it is. You guys are amazing!

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I am Sick, NOT Stupid.

I am Sick, NOT Stupid.

Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p

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Painsomnia - Tick tock, tick tock, the clock keeps moving...

Painsomnia – Tick tock, tick tock, the clock keeps moving…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some

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Painsomnia - Tick tock, tick tock, the clock keeps moving...

Painsomnia – Tick tock, tick tock, the clock keeps moving…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some

[ 9 comments ] | [ read more ]

No Rhyme or Reason. I have done all I can do.

No Rhyme or Reason. I have done all I can do.

What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was

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Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

  There is a growing community of our readers who have been using twitter to connect. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory".  I personally (Christine) use the twitter account so many times you will be hearing directly f

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Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

  There is a growing community of our readers who have been using twitter to connect. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory".  I personally (Christine) use the twitter account so many times you will be hearing directly f

[ 10 comments ] | [ read more ]

Please Don't Ask My Dad About Lupus!

Please Don’t Ask My Dad About Lupus!

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  It's one

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Please Don't Ask My Dad About Lupus!

Please Don’t Ask My Dad About Lupus!

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  It's one

[ 8 comments ] | [ read more ]

30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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