ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of:
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Please use the toolbar to the left to view articles by category, or use the search box above. Our most recent entries are below.

Heathy Eating Month: Canned Foods: Healthy?!

Sometimes there are times in life that we’re too busy, too sick, too tired, or too over-worked to stop at the grocery and get fresh food. What happens when we’re stuck in the house with no fresh food to eat? Worse: what happens when you have to feed others with the bare minimum of food in the house? Though canned food sometimes gets a bad reputation for being packed in sugars, salts, and a can, canned food can be very convenient to have on hand for those stretches of time you know you won’t be able to make it to the market. But, what canned food is the best to eat? What’s the healthiest? What can you make and serve with canned food? Here I’ll show some quick and easy ways to perk up your culinary life using simple canned foods that are cheap, easy to store, and last a long time; further, these recipes are healthy and can be altered to your diet and taste.

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"Spoonie" Household Cleaning and Organizing Tips:

This very helpful general list of "life learned" tips and suggestions was written by one of our message board moderators, LindaK. (With some help and tips from other members.)This list is chock filled with helpful goodies that will save you "spoons"!.

Continue reading ""Spoonie" Household Cleaning and Organizing Tips: " »


How To Feel Sexy When You Are In Pain?

When our beloved Christine suggested an article on this topic, I have to admit my first gut reaction was "Why should I HAVE to pretend to feel sexy when I'm in pain?" It made the hair on the back of my neck stand up. I got all defensive immediately and got that emotional guard wall up and thought of lots of self-righteous reasons why I should not be expected to feel sexy... ever... when I am hurting. My knee-jerk reaction assumed instantly that to be sexy while you are in pain would require pretending... Then, I realized that she did not use the word, "pretend," in her suggestion!

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Tips for the chronically Ill: Writing thank you notes

After a recent party, I had to tackle the task of writing thank you notes. I know I always like to receive thank you notes, since they brighten up a dreary day. Likewise, I am a grateful person and want to show appreciation for any gift or favor I receive, but there are times, due to fatigue, hand pain, or just plan lack of motivation when writing thank you notes can be a big, overwhelming task. The following tips have helped me and I hope they help you.

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Emergency Preparation - Remember the six M's

Unfortunately we live in a time, where it seems that emergencies and disasters happen quite often. Some are man-made like terrorism threats and some are natural disasters like floods and hurricanes. In any case, we need now more than ever to be prepared and it is even more important to be prepared when you or a loved one have a chronic illness to also be concerned about.

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Travel Tips for the Chronically Ill or Disabled

Even if you no longer go on vacations, there may be times you must travel for business or to attend family events. Leaving home for any reason, especially when traveling by airplane, requires careful planning as we are required to bring more items from home and need to fit them into less luggage. What follows are some suggestions for how to get from here to there.

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2007’s Top Ten “Disability Hygiene” Helper List

These helpful items and ideas will soon become a staple in your home.

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Tips for Traveling with a Chronic Illness!

What is one of the most stressful things to do during the holidays? Travel!!! Most of us have more than one place to be this holiday season, whether it's traveling between in-laws or traveling between family members, it's still the
stress of having to pack up the car and the kids and traveling as long as hours on end.

Continue reading "Tips for Traveling with a Chronic Illness!" »


School Issues - Don't let school get you down, work it out

School is difficult for many students. Unfortunately when you add a chronic illness to the list of stresses, it get’s even more difficult. I know this personally, as a 17 year old teenager with Psoriatic Arthritis I have to deal with many issues that make school even harder for me.

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Going organic?

Have you thought about it?
I have! In fact, I find that when I eat organic and hormone-free foods, I actually feel better.

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Do you Have a Power WORD?

For the past seven years, I have begun my days at 5:15 in the morning. I get up that early in the morning, because each day I have an important “date” to go on- my “sacred date.” My sacred date consists of me, prayer, meditation and a strong cup of coffee.

Continue reading "Do you Have a Power WORD?" »


The Dreaded Grocery Store: Tips on saving time and energy while grocery shopping

Out of all the areas my illness kills the joy for-grocery shopping is number one on the top ten list! Just the mere thought of grocery shopping makes me want to crawl into bed and declare myself on a fast! I simply cannot stand grocery stores.

Continue reading "The Dreaded Grocery Store: Tips on saving time and energy while grocery shopping" »


Easy Food Prep for the Chronically Ill Person

As a professional organizer faced with several chronic conditions, I do my best to eat fresh foods- don’t we all? But there are days when you just don’t have a single brain cell available to think about “What’s in the house?”or. “What do I have energy to fix?” or “What am I interested in eating/can stand to eat/have enough energy to eat?”

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The Necessities of a Well Stocked Sick Pantry

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Stepping into the Shower with Chronic Illness

Ah, showering. That major task that, for those of us with a chronic illness, ranks right up there on the energy scale with oh, lawncare? Home renovation? Maybe car repairs? Why, I have to schedule personal hygeine days right along with doctor appointment days, grocery shopping days, and all those days which contain that one major endeavor, that spends all our "spoons" in one place.

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3 Steps to Maintaining Friendships through the Chaos of your Illness

I was sixteen when I was first diagnosed with Systemic Lupus. At that age, most teenagers are at the height of self-expression and feelings of invisibleness. Making friends and sharing who you are with your friends is one of the most cherished parts of youthfulness. But when you are teenager with a chronic illness, it can be very difficult to keep up the pace and the level of commitment it takes in order to strengthen friendships in your life. For me, I had less than a handful of friends that understood my physical and oftentimes, cognitive(forgetfulness) limitations.

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Breaking the Ice on Sex, Intimacy & Chronic Illness

I was diagnosed with SLE in my teens, long before I'd become sexually active. When sex became a part of my identity, instead of being a glorious whirlwind of sloppy kisses and knock-your-socks off orgasms, I viewed it as
yet another physical activity, I had to worry about! My bones popped so often, my husband and I joked that I had the ability to make love and make music at the same time. My toes and legs would stiffen from the uncontrollable muscle spasms; and forget about spontaneity, I could be exhausted one minute and achy the next.

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Sleep- Not Always Easy to Get

As many of us know sleep can often be a dream in itself when you’re lying in bed at night wide eyed and frustrated, unable to fall asleep. With many chronic illnesses and many medications comes the dreaded insomnia, but although we are unable to come up with a surefire cure for the odd sleepless night, there are some tips and tricks that can help you out the next time you’re longing for some zzzz's.

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Zen Cleaning

I am a packrat. There, I admitted it! I love pretty knick-knacks and doing a variety of crafts, and my "stuff" tends to end up everywhere. Last January I started a project I call "Zen Cleaning." Get out your digital or regular camera, and play along!

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Product Zen

I admit it... I have been having a love affair my whole adult life... with PRODUCTS. Want to get me excited? Just show me the newest bathroom cleaner, bath gel, furniture polish or hairspray! It doesn't matter if I have three cans of furniture polish already. I can't resist the new kind! Yes, I know, it's a personality defect!!

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Micro-Zen Organizing

Do you know that frustrating feeling of looking for some tiny object, and thinking "Darn it! I just saw that yesterday!" Sure you do! Homeless objects floundering in some drawer are the problem, Micro-Zen is the cure.

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Saying No...Without Saying No!

Do you have a hard time with saying no, and find yourself agreeing to a task or responsibility you know you won't have the energy, time, or even physical ability to do? Are you so over-committed that you can't see a free space in your calendar for weeks? If so, read on!!

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Project YOU!

My life transformed from a full time job and doing image consulting to spending 100% of my time at home, with occasional part time image consulting. This created a real personal image crisis for me. Most of my wardrobe was business attire, and my few casual clothes were VERY casual! There was little in-between. I had to adapt, and you may be facing the same challenges.

Continue reading "Project YOU!" »


 

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