ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of:
But you don't look sick?
 
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Please use the toolbar to the left to view articles by category, or use the search box above. Our most recent entries are below.

10 Tips for Visiting Someone Who is Sick

I have unfortunately been on both sides of this article. I have spent time visiting friends and family when they have been sick, but I have more often been the patient everyone is visiting. Many of the visits went very well, but unfortunately others didn’t go so well for them or me. Hopefully my mistakes or my tips from experience will help you.

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What to Do When You Are Waiting to See The Doctor

My "Waiting Bag"- Since I unfortunately spend alot of time in doctors' waiting rooms, I quickly learned to make the most of this seemingly wasted time.

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The problem of a single “invisible” mother

Here we hear all kinds of controversy about day care for working Americans as another presidential election runs on and on through the mud puddles. What about those of us with invisible illnesses?

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Care Giver Support: Handling the Unexpected With an Elderly Loved One

The other day my mother had a medical emergency and I was totally unprepared. I had always prided myself on the fact that since my daughter Christine had Lupus, I was pretty good at handling emergency hospital visits. But this time it was my 82 year old mom and I did not have the situation or myself under control.

Continue reading "Care Giver Support: Handling the Unexpected With an Elderly Loved One" »


Never ask - "How are you feeling today?"

It's taken me a long time to get out of the automatic habit of saying, "How are you?" when I see someone. That question would be all right to ask most healthy people because the spontaneous response of "fine" would be appropriate.

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Needing Help and Getting Organized

We’ve all done this- had to ask the dreaded question of “can you help me?” Whether it’s needing help in cleaning or making it to the store, we all have our limitations and at some time, need to ask for help. Of Course asking for help isn’t easy, especially when met with comments like, “again?” “What now?” or the popular rolling of the eyes. The worst is asking someone to pick up something for you, only to realize that the very next day you need something else. Here are some ideas to try to at least help keep things a little more organized.

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Tips for Traveling with a Chronic Illness!

What is one of the most stressful things to do during the holidays? Travel!!! Most of us have more than one place to be this holiday season, whether it's traveling between in-laws or traveling between family members, it's still the
stress of having to pack up the car and the kids and traveling as long as hours on end.

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Breaking the Ice on Sex, Intimacy & Chronic Illness

I was diagnosed with SLE in my teens, long before I'd become sexually active. When sex became a part of my identity, instead of being a glorious whirlwind of sloppy kisses and knock-your-socks off orgasms, I viewed it as
yet another physical activity, I had to worry about! My bones popped so often, my husband and I joked that I had the ability to make love and make music at the same time. My toes and legs would stiffen from the uncontrollable muscle spasms; and forget about spontaneity, I could be exhausted one minute and achy the next.

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Everything I thought I knew about going to the hospital. ( also known as do what you gotta do)

Unfortunately when you have a child with a chronic illness, you come to think of yourself as some sort of expert on the subject. It's not exactly a specialty that you dreamt of having, but one nonetheless that you take ownership of with some sense of pride.

Continue reading "Everything I thought I knew about going to the hospital. ( also known as do what you gotta do)" »


 

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