My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video film: the kind
[ 3 comments ] | [ read more ]
Cozy up, have a seat on the couch and chat with Christine and some friends! That is exactly what it will feel like when you take the time to watch these new videos from WebMD.com WebMD.com has launched a new community TV series called "Speaking of Lupus". The series is hosted by Christine Mi
[ 8 comments ] | [ read more ]
I spoke on June 16th at the #140conf in NYC with Amanda Greene, Brenda Blackmon, and Kelly Dawn. Our panel was called "the lupus ladies of twitter". We spoke about how social media has not only brought us together as a panel from across the country, but about how social media (twitter, facebook, ema
[ one comment ] | [ read more ]
You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please
[ 65 comments ] | [ read more ]
I recently participated in a program called Photo I.D. which is a 2-3 minute mini-biography using pictures and your voice only. This will be aired on Verizon Fios Channel 1 in New Jersey and Long Island. It was a fun experience. Here is the video!
[ 10 comments ] | [ read more ]
A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th
[ 29 comments ] | [ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
