Many years ago I heard a joke that was going around and it went like this.
A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p
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What to do when you have done everything, and still feel like crap.
There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was
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Alright, I’ll say it. I’m usually the one to vocalize what most people keep to themselves, which more often than not, gets me in to trouble. However, something inside of me is convinced that in this Spoonie corner of the world, I’m not alone. It’s sometimes hard to be thankful at Thank
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Batteries not included. Shipping and handling extra. Minimum purchase required. Small print is everywhere and on just about everything. I come with a Spoonie version of small print: if I feel up to it. Whenever I make plans, I always have to add “if I feel up to it.”
I never know how I will f
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You do not need to spend a lot of money. You can be thoughtful in so many ways. The point is to do something, and do something today. I have listed below 36 easy ideas that anyone would appreciate. Sometimes it is hard for a patient to ask for help. Just do it! The hardest thing about chronic dise
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I have been working at living my life transparently. To live my life transparently means that I live my life openly, that I share what I’m going through, my ups and downs, my successes and failures, my struggles and disappointments as well as my successes and happy moments. To live my life transpa
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For those of us with Lupus, it is a very definite, consuming and frustrating disease. For those of you who love someone with Lupus, it too can be a very frustrating disease. And as hard as it is for you to try and understand what Lupus is and how it wreaks havoc on our lives, please also try and rem
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We have forgotten how to laugh.
There. I said it. Not that I can blame a single one of us. Let’s face it, when you wake up, throw your leg off the bed and hear it echo in the room like a creaking door in a 1950’s horror flick, the giggle factor isn’t really at an all time high. I don’t th
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I feel as though I spend all of my time trying to get my spoonie-self heard. I wear my spoon pin to work- every day. I remind friends, family, co-workers about treatments and such. On the days when I call in sick to work or cancel a social function, I remind these people what I am dealing with. You
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I have unfortunately been on both sides of this article. I have spent time visiting friends and family when they have been sick, but I have more often been the patient everyone is visiting. Many of the visits went very well, but unfortunately others didn’t go so well for them or me. Hopefully my m
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