The hardest lesson I've had to learn in living with chronic illnesss is that I can't do it all. I'm a overachiever by nature. I want to do it all, have it all, see it all, be the girl who never says no. Letting people down, and of course, myself down, was the horror that I feared more than anything.
I have been working at living my life transparently. To live my life transparently means that I live my life openly, that I share what I’m going through, my ups and downs, my successes and failures, my struggles and disappointments as well as my successes and happy moments. To live my life transpa
Lines are funny things. You either cross a line or not. The shortest distance between two points is a straight line. They can be sharp or fuzzy and can keep you going on the right path. The wrong line can appear to be the right way but lead you to a dead end or detour. What does all this line talk h
I feel like life's a punching bag. I'm forever knocked down by pain or knocked out by opiates. At least it's consistent in its beatings. Each day brings the knowledge that something will be off...something will be wrong. I don't know what it will be, nor do I know the level at which it will disable
A lot has changed in the 14 years since I first got sick. I've gotten diagnoses, lost diagnoses, lost old friends, gained new ones, given up on old dreams and discovered new plans for the future. However, even though the years since diagnosis have been uncertain and will likely continue to be that w
“Your cells react to bacteria and viruses differently than mine. You don't get sick, I do. That's also clear…We're on the same curve, just on opposite ends.” Elijah Price, “Unbreakable.” I want to introduce you to my brother Justin. He’s three years younger than me; same parents, same
From day one, I have been a perfectionist. I know that when I was in preschool, the teacher told my parents that if I could not cut with those rounded tip scissors on the exact line, then I just wouldn’t do it. And that was only the beginning of my quest for perfection. But that’s a pretty diffi
We interrupt your regularly scheduled program to bring you this Spoonie Meltdown. Last week started like any other week. Well, that might be overstating it. I had been on vacation. I came back Monday to an already overfull work week and hundreds of emails to respond to from the days out. I also had