If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
[ 19 comments ] | [ read more ]
A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found it harder and harder to get around the
[ 25 comments ] | [ read more ]
Help wish Christine a Very Happy Birthday!!!! July 27th is my birthday so this year to start off my lupus fundrasing efforts, and to kick start our team efforts I am asking all my family, friends, "spoonies" and facebook family for just one gift. I do not need a cute outfit, a day at the spa or
[ 10 comments ] | [ read more ]
Grab the kids, Bring your friends, and enjoy the day by the bay! Blues on the Bay for Lupus, Sunday, July 31st at the Long Island Maritime Museum in Sayville. 86 West Avenue, West Sayville, NY *This is a rain or shine event. It was so much fun last year to meet a few new "lupus friend
[ no comments ] | [ read more ]
Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w
[ 9 comments ] | [ read more ]
Christine Miserandino founder of ButYouDontLookSick.com and author of "The Spoon Theory" was featured in New York Newsday on Sunday May 1, 2011. We know that many of our readers wanted to see this, but could not access the website directly to see and read the article. We have attached article and ph
[ 6 comments ] | [ read more ]
A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th
[ 29 comments ] | [ read more ]
IN Honor of Mother's Day in the US, my mother wrote this article about being a mom of a child with Lupus. My daughter Christine has had Lupus, with the accompanying vast array of symptoms, since she was 15 years old. During college, in her attempt to explain her illness, she wrote about Lup
[ 18 comments ] | [ read more ]
In Honor of Lupus Awareness Month. The following speech was given by Christine Miserandino - Donato at the Lupus Gala Brunch given by the Lupus Alliance of Long Island/ Queens. It is titled "We All Have Lupus" Thank you to the Lupus Alliance and the Board of Directors for this honor. I speak
[ 16 comments ] | [ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
