Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full

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30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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10 Tips For Navigating Your Way Through Brain Fog

10 Tips For Navigating Your Way Through Brain Fog

There are several chronic ailments that affect cognitive function. Also, certain medications can cause forgetfulness or confusion. The non-medical term for this is brain fog, and it seems pretty apt. I like to compare it to trying to run while knee-deep in mud. I've been dealing with varying amou

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May 12 is Fibromyalgia Awareness Day!

In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically

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Poetry: Pieces of Us

Poetry: Pieces of Us

To be separated Body and mind Split between thoughts of love And questions for the enemy Yet they both reside In the same body In my body There are no answers Just community A family of people like myself Found here Yet spread all around the world Provide strength

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Losing the Battle...But Winning the War

Losing the Battle…But Winning the War

“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to

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Easing the Strain: Tips For Body & Mind

Easing the Strain: Tips For Body & Mind

As someone who has been chronically ill for 12 years, I could talk in excess about the number of things I have purchased to ease both body and mind.  I am almost entirely housebound, and as a result, I work diligently to make my home as disability-friendly as possible. If I had to pick ten thing

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Autoimmune Fatigue….Tips To Cope When You’re Tired

Overwhelming fatigue….just the phrase itself sends sufferers of autoimmune disorders into a chorus of affirmative head nods.  Whether the fatigue stems from Lupus, MS, Rheumatoid Arthritis, Fibromyalgia or Chronic Fatigue Syndrome itself, the debilitating feeling of completely “running out of s

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Poetry: Fibro

Poetry: Fibro

A poem submitted by one of our writers and she also has been reading our site for some time now. She lives with Fibromyalgia. Fibro, A poem. Could you imagine being 20 years old, 30 years old, And being stuck in the body of a 90 year old?    Watching your skin turn to hell and flake, away

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A Balancing Act: how I’m managing the daily currency of Spoons

A Balancing Act: how I’m managing the daily currency of Spoons

Living with a chronic illness can be like walking a tightrope. I live with Fibromyalgia, Irritable Bowel Syndrome and a depressive disorder. In order to best manage my Fibromyalgia, it’s vital that I carefully pace myself. Too much leads to burn out, but too little activity can also worsen my s

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