May 12 is International Fibromyalgia Awareness Day!

May 12 is International Fibromyalgia Awareness Day!

In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.

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30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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Poetry: Pieces of Us

Poetry: Pieces of Us

To be separated Body and mind Split between thoughts of love And questions for the enemy Yet they both reside In the same body In my body There are no answers Just community A family of people like myself Found here Yet spread all around the world Provide strength

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Poetry: I Didn't Know...

Poetry: I Didn’t Know…

I didn't know back then that life would change forever. I didn't know what pain was then. I didn't know the sacrifices and allowances I would end up making. I didn't know my hair could hurt. I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do

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Poetry: Fibro

Poetry: Fibro

A poem submitted by one of our writers and she also has been reading our site for some time now. She lives with Fibromyalgia. Fibro, A poem. Could you imagine being 20 years old, 30 years old, And being stuck in the body of a 90 year old?    Watching your skin turn to hell and flake, away

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A Balancing Act: how I’m managing the daily currency of Spoons

A Balancing Act: how I’m managing the daily currency of Spoons

Living with a chronic illness can be like walking a tightrope. I live with Fibromyalgia, Irritable Bowel Syndrome and a depressive disorder. In order to best manage my Fibromyalgia, it’s vital that I carefully pace myself. Too much leads to burn out, but too little activity can also worsen my s

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Book Review: Living Well with Chronic Fatigue Syndrome and Fibromyalgia:

Book Review: Living Well with Chronic Fatigue Syndrome and Fibromyalgia:

Fibromyalgia is frequently diagnosed but poorly understood. Chronic fatigue syndrome by its very name is the source of conflicting opinion and no real consensus on treatment. What is a person to do when they discover they have one or both of these ailments? Resign oneself to an ever-deteriorating li

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