A poem submitted by one of our readers. I sit staring out my window again Stuck in this room By an illness that won’t let me free I look out at the rain And feel Blue with sadness for All that was, is and never will be Red with frustration and anger Hating the pain and endless days Green with en
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A Poem submitted by one of our ButYouDontLookSick.com members. If you could live in my body, just for a day, maybe you wouldn't think that I feel okay. You might understand what it's like to be tired by just trying to live, just doing what's required. If you could live in my body you might begin t
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The cold makes me hurt, brings illness to my cramped indoors and makes me dress my son up like an Eskimo and then rush to get him undressed when he has to pee after the hour long dressing process and before we get out the door. Snowflakes, I should only find them a dreary misery. However, I love the
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A poem submitted by one of our readers. I stand here naked Looking in the mirror Sad because My body is not what it used to be It was once so tough A dancer’s body both soft and strong Now it has been weakened by this It is not the body I know Legs that won’t hold me up Shape I wish I did not
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This month we had a contest and asked some of our readers, members and volunteers to write a creative peice about What has BYDLS and "the spoon theory" meant to you? Sharon Onyett ("Shazinoz", her bydls.com message board name) submitted this poem. “But you Don’t Look Sick” Is an often heard
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This month we had a contest and asked some of our readers, members and volunteers to write a creative peice about What has BYDLS and "the spoon theory" meant to you? This is a VIDEO entry by our friend from Canada - LA Gozzard, also known as ghdcanada on the bydls.com message boards! She is so crea
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This month we had a contest and asked some of our readers, members and volunteers to write a creative peice about What has BYDLS and "the spoon theory" meant to you? "stationaryfaery" (her bydls.com message board name) submitted her groovy written word and poetry. I haven’t been a spoonie for t
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A poem submitted by one of our readers, Amy Burg. Life is not easy, Life is not fair. Sometimes you need a little extra help, A little extra care. I needed to see a doctor, I needed to see someone quick. For the longer I had to wait, The more and more I was getting sick. Arriving at the hospital,
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A Poem submitted by one of our readers. No More I don't want this anymore I want it gone Poof No more hurting No more pain No more endless tired days I want something good to happen To me To Jim To my life So full of pain, Tiredness, sadness Frustration Some hope Want a child Want to be free To do
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A Poem submitted by one of our readers. I have Postural Orthostatic Tachycardia Syndrome. I wrote this after a friend who I had not talked to in a year or so said to me on the phone, "you don't sound sick". -Stacey Yount They don't know me These people who say They are my friends They don't know
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