ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and features a collection of articles, personal stories, book and product reviews, health resources and an active message board for the disabled, or those living with chronic pain or illness.
Please use the toolbar to the left to view articles by category, or use the search box above. Our most recent entries are below.
Television: Christine Donato, board member of the Lupus Alliance of America, is featured in a recent edition of Legislative Report with Senator Kemp Hannon
Christine Donato, board member of the Lupus Alliance of America, is featured in a recent edition of Legislative Report with Senator Kemp Hannon (R-NY) to promote Lupus Awareness Month. In the interview is also JoAnn Quinn the executive director of the Lupus Alliance, Long Island/ Queens affiliate. It was a wonderful experience and I was honored to be chosen to be apart of the interview. The interview can be seen below. Please note that the interview had to be saved in 2 halves, so you will need to view both videos to see the entire show.
This Spring Christine had the opportunity to participate in a local PSA (Public Service Announcement) for cable teleivision for the Lupus Alliance of America- Long Island/ Queens Affiliate. Christine is in the center back row. There are 2 spots airing currently. The first spot is 30 sec. and the 2nd video spot is a minute. Feel free to help spread Lupus Awareness by sharing the videos with your friends, family, or by sharing on your social networks like twitter, facebook, myspace or your personal blogs.
Television: Keeping Kids Healthy: Lupus A Medical Mystery - Featuring Christine Miserandino
May is Lupus Awareness Month! How Will You Spread Awareness?
See Christine's television appearance focusing on living life with lupus..
Keeping Kids Healthy (PBS and American Public Television) Nationally Syndicated
Won a 2005 New York Emmy Award EPISODE 401 - Lupus: A Medical Mystery
*Check your local listings for air dates and times.
What happens when you know your child is sick, but no one can tell you what's wrong...sometimes for years? Lupus, a debilitating disease, is still a medical mystery. Join Dr. Winnie King as we attempt to unravel this mystery on a full-show episode of Keeping Kids Healthy. Without a single known cause, no simple test for diagnosis and symptoms so vague and so varied, Lupus can often elude the doctors trying to detect it. But learning about Lupus is actually the first step in detecting it. You'll hear from a young woman, Christine Miserandino who lived with Lupus since she was 14 but wasn't diagnosed until 22;. Hear the story of how one mother refused to give up until her daughter's condition was diagnosed and hear a Lupus expert discuss symptoms, treatments, care and the latest news on medical advances in Lupus research.
AllTop.com has Chosen ButYouDontLookSick.com has one the best sites around!
We are proud to announce that we have been chosen to be featured on AllTop.com’s Lupus and Health sections! Thanks to Guy Kawasaki for suggesting butyoudontlooksick.com to be featured with such great company! Check out alltop.com for other great websites and blogs. AllTop.com is sort of a “digital magazine rack” of the Internet. It lists the titles and direct feeds of the best blogs and website and any given topic. Check it out!
Listen to Christine Miserandino and Lisa Copen Talk on BlogTalkRadio!
On Semptember 8th 9am EST Christine Miserandino kicked off "National Invisible Illness Week" in a casual conversation with the Lisa Copen. We took questions and comments from phone in callers. We even received a surprise call from Christine's husband Frank. We talked about being mothers with Chronic Illness, having hope despite illness, finding support online and more! You can listen to, download, and share the radio show by clicking the blue widget below!
Christine Miserandino will be speaking during the kick off of National Invisible Chronic Illness Awareness Week
Christine Miserandino of butyoudontlooksick.com, and Lisa Copen of Restministries.org will "kick off" National Invisible Chronic Illness Awareness Week Monday September 8 at 12 EST.Click here for a time zone converter. Seminars will be conducted via Blog Talk Radio FREE and is easy to particpate. Do not let this event pass you by! Click here for more information on the weeks event or to sign up.
Remember to come this Monday September 8th at to talk to Christine directly or show your support!
ButYouDontLookSick.com is busy in the Health Blogosphere
This has been a great week in the medical/ health blogosphere for ButYouDontLookSick.com! We are proud to have been mentioned in articles by some really talented bloggers and we even have been nominated for an award. I originally started ButYouDontLookSick.com writing about my own experiences with Lupus, but I soon began to realize that many of us with "invisible diseases" have many of the same feelings or experiences. We can use technology as a tool to help each other and build a community.
Christine Miserandino's writing and speaking engagements:
Media: Television
Keeping Kids Healthy : Lupus A Medical Mystery - Featuring Christine
Miserandino
Keeping Kids Healthy (PBS and American Public Television) Nationally
Syndicated won a 2005 New York Emmy Award (11/2005) re-aired (2/2006,
3/2006, 6/2006) EPISODE 401 - Lupus: A Medical Mystery
Online
1/ 24/08 -Christine has been interviewed for today's CNN.com "empowered patient" column.
Empowered Patient, a regular feature from CNN Medical News correspondent Elizabeth Cohen, helps put you in the driver's seat when it comes to health care. This week's topic asks the question, "Are you an obnoxious patient?". Christine was quoted in tips # 3, 4 and 5! Ms. Cohen was easy to speak with and it was a pleasure to work with her. I hope to again in the future as patient advocacy and empowerment is something I feel so strongly about.
Story Highlights Be an informed, confident patient, but also listen to your doctor's view Don't demand a prescription without an office visit Share, but don't overload, your doctor with info you've gathered independently If you need more than 15 minutes, make special arrangements beforehand
2/9/07 - Christine Interviewed for
CNN.com Blog on Friday, February 09, 2007 for CNN.com "Paging Dr.
Gupta" medical/health blog. the article was called "Handling a
friend's diagnosis." It has tips for what to do when visiting
someone who is sick. You can read the full article
here.
Print Media: Medical and Health Related Newsletters
Emerge - Quarterly journal of CFS / ME Victoria Vol 26, No 1 Autumn 2007
- "A Lesson in Adapting from my Dog"
Emerge - Quarterly journal of CFS / ME Victoria Vol 26, No 4 Summer 2006
New Jersey Chronic Fatigue Syndrome Association Spring / Summer 2006
Newsletter
Southern Colorado Pulmonary Hypertension Group - June 2006 Newsletter
Bergen, NJ CFS Support Group Newsletter / April 2006 Vol. III, Issue #28
Nationally Syndicated Column "DISABILITIES" (Week #183) "LUPUS OFTEN
MISUNDERSTOOD" March / 2006
Lupus Link Ontario, Volume 4 Issue 1 Winter / Spring 2006
ButYouDontLookSick.com has been featured as a resource NorthCoast SLE &
FMS Support Group Newsletter March 2006 - Feature story about
ButYouDontLookSick.com E-Magazine
NorthEast Fibro-Items Newsletter Volume 7 - Spring Issue featured
article "Addition by Subtraction"
Access Press, Volume 16, Number 11, November 10, 2005
PEP Talk Newsletter September 2005
PHA Volume 3 Issue 1 Spring / Summer 2005
Hypoparathyroidism Newsletter June 2005
RSDhope.org - February 2005
Pulmonary Hypertension Association - February 2004
Spondylitis.org - May 2004 News section - quoted "The Spoon Theory"
Print Media: Newspapers and Magazines
Herald Community Online (February, 2005 NY) 'She
never looked sick' - Personal interview and feature story
8/2007 -
ButYouDontLookSick.com website has won a Hope Award 2007. The Hope
Award is given to websites that offer positive support and encouragement
to people suffering from chronic illnesses, and is awarded by
IBSTales.com, a site for irritable bowel syndrome sufferers.
11/7/2005 - WKKG 101.5 Indiana Country Radio featured "Website of the
Day"
Blogosphere
We at butyoudontlooksick.com are proud to be mentioned frequently in the health and medical blogosphere. We can not list all entries, but below are some noteworthy posts.
1/4/08 Thanks to Amy Tenderich at Diabetesmine.com, who wrote an article called "Life, by the Spoonful" where she talks about living with Type 1 Diabetes and uses "The Spoon Theory" to talk about her life and the daily management of her disease.
1/4/08 At Dlife.com, Amy also mentions us in her weekly column called "Straight up". This week she talks about explaining the demands of living with a chronic illness in an article called "Counting Spoons".
Butyoudontlooksick.com website has won a Hope Award 2007
We are proud to announce that Butyoudontlooksick.com website has won a Hope Award 2007. The Hope Award is given to websites that offer positive support and encouragement to people suffering from chronic illnesses, and is
awarded by IBSTales.com, a site for irritable bowel syndrome sufferers.
Christine Miserandino will be a featured speaker for Invisible Chronic Illness Awareness Week
Christine Miserandino, writer- butyoudontlooksick.com will be a featured speaker during the upcoming National Invisible Chronic Illness Awareness Week, September 10-16, 2007.
Increase Your Website Traffic with Product Reviews at ButYouDontLookSick.com
Product Reviews are an excellent way to get the word out about a unique product or business. They work much like a testimonial, which we all know is a great promotional tool, but product reviews can actually be considered a "step up" from testimonials, since they go into more detail and are by far more personal.
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