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Published in the NY Valley Stream Herald, May 1-7, 2008 Author: Andrew Hackmack

Frank, Christine and Olivia Emma Donato at the Lupus Gala Brunch
Continue reading "Lupus can’t stop woman’s big heart" »
This has been a great week in the medical/ health blogosphere for ButYouDontLookSick.com! We are proud to have been mentioned in articles by some really talented bloggers and we even have been nominated for an award. I originally started ButYouDontLookSick.com writing about my own experiences with Lupus, but I soon began to realize that many of us with "invisible diseases" have many of the same feelings or experiences. We can use technology as a tool to help each other and build a community.
Continue reading "ButYouDontLookSick.com is busy in the Health Blogosphere" »
Christine Miserandino's writing and speaking engagements:
- Media: Television
Keeping Kids Healthy : Lupus A Medical Mystery - Featuring Christine
Miserandino
Keeping Kids Healthy (PBS and American Public Television) Nationally
Syndicated won a 2005 New York Emmy Award (11/2005) re-aired (2/2006,
3/2006, 6/2006) EPISODE 401 - Lupus: A Medical Mystery
- Online
1/ 24/08 -Christine has been interviewed for today's CNN.com "empowered patient" column.
Empowered Patient, a regular feature from CNN Medical News correspondent Elizabeth Cohen, helps put you in the driver's seat when it comes to health care. This week's topic asks the question, "Are you an obnoxious patient?". Christine was quoted in tips # 3, 4 and 5! Ms. Cohen was easy to speak with and it was a pleasure to work with her. I hope to again in the future as patient advocacy and empowerment is something I feel so strongly about.
Story Highlights Be an informed, confident patient, but also listen to your doctor's view Don't demand a prescription without an office visit Share, but don't overload, your doctor with info you've gathered independently If you need more than 15 minutes, make special arrangements beforehand
To read the whole story:
http://www.cnn.com/2008/HEALTH/01/23/ep.obnoxious/index.html?iref=newssearch
2/9/07 - Christine Interviewed for
CNN.com Blog on Friday, February 09, 2007 for CNN.com "Paging Dr.
Gupta" medical/health blog. the article was called "Handling a
friend's diagnosis." It has tips for what to do when visiting
someone who is sick. You can read the full article
here.
- Print Media: Medical and Health Related Newsletters
Emerge - Quarterly journal of CFS / ME Victoria Vol 26, No 1 Autumn 2007
- "A Lesson in Adapting from my Dog"
Emerge - Quarterly journal of CFS / ME Victoria Vol 26, No 4 Summer 2006
New Jersey Chronic Fatigue Syndrome Association Spring / Summer 2006
Newsletter
Southern Colorado Pulmonary Hypertension Group - June 2006 Newsletter
Bergen, NJ CFS Support Group Newsletter / April 2006 Vol. III, Issue #28
Nationally Syndicated Column "DISABILITIES" (Week #183) "LUPUS OFTEN
MISUNDERSTOOD" March / 2006
Lupus Link Ontario, Volume 4 Issue 1 Winter / Spring 2006
ButYouDontLookSick.com has been featured as a resource NorthCoast SLE &
FMS Support Group Newsletter March 2006 - Feature story about
ButYouDontLookSick.com E-Magazine
NorthEast Fibro-Items Newsletter Volume 7 - Spring Issue featured
article "Addition by Subtraction"
Access Press, Volume 16, Number 11, November 10, 2005
PEP Talk Newsletter September 2005
PHA Volume 3 Issue 1 Spring / Summer 2005
Hypoparathyroidism Newsletter June 2005
RSDhope.org - February 2005
Pulmonary Hypertension Association - February 2004
Spondylitis.org - May 2004 News section - quoted "The Spoon Theory"
- Print Media: Newspapers and Magazines
Herald Community Online (February, 2005 NY) 'She
never looked sick' - Personal interview and feature story
The Valley Stream Herald (September, 2004 NY) 'Take
a walk for Lupus V.S. woman, family will celebrate 11th annual Lupus
Alliance fund-raiser Oct. 17' - Personal interview and feature story
about fundraising for Lupus Walk
Long Island Woman Magazine (May, 2004 NY) 'Living
With Lupus, A Young Woman's Journey'
The Valley Stream Herald (February, 2004 NY) ''But
you don't look sick' Valley Stream woman takes steps to increase the
public's awareness of Lupus'
- Media: Speaking Engagements
Christine Miserandino is a featured speaker for
Invisible Chronic Illness Awareness Week September 10-16, 2007.
The Lupus Alliance of America Long Island / Queens Affiliate June 2007
"Kids and Teens" Panelist
The Lupus Alliance of America Long Island / Queens Affiliate "Growing up
with Lupus" Symposium June 2006
GFWC Pocono Mountain Women's Club - March 2005
Phi Sigma Sigma, Hofstra University - Women's Health and Wellness Fair
- Awards Won
4/27/08 - Lupus Gala Brunch Honoree Lupus Alliance of America- Long Island/ Queens Affiliate
8/2007 -
ButYouDontLookSick.com website has won a Hope Award 2007. The Hope
Award is given to websites that offer positive support and encouragement
to people suffering from chronic illnesses, and is awarded by
IBSTales.com, a site for irritable bowel syndrome sufferers.
8/2007 - ButYouDontLookSick.com is a winner of one of
HealthCentral's 2007 Top Sites Awards
7/2007 - ButYouDontLookSick.com has been listed as number 54 on
EDrugSearch.com Healthcare 100 - The world's top blogs on health and
medicine.
11/2006 - ButYouDontLookSick.com has been selected as the website of the
week by LongIsland.com.
11/8/2005 - KSDK News Channel 5 "Website
of the Day"
11/7/2005 - WKKG 101.5 Indiana Country Radio featured "Website of the
Day"
- Blogosphere
We at butyoudontlooksick.com are proud to be mentioned frequently in the health and medical blogosphere. We can not list all entries, but below are some noteworthy posts.
1/22/08 Grand Rounds medical blog host
1/4/08 Thanks to Amy Tenderich at Diabetesmine.com, who wrote an article called "Life, by the Spoonful" where she talks about living with Type 1 Diabetes and uses "The Spoon Theory" to talk about her life and the daily management of her disease.
1/4/08 At Dlife.com, Amy also mentions us in her weekly column called "Straight up". This week she talks about explaining the demands of living with a chronic illness in an article called "Counting Spoons".
We are proud to announce that Butyoudontlooksick.com website has won a Hope Award 2007. The Hope Award is given to websites that offer positive support and encouragement to people suffering from chronic illnesses, and is
awarded by IBSTales.com, a site for irritable bowel syndrome sufferers.
Continue reading "Butyoudontlooksick.com website has won a Hope Award 2007" »
| Christine Miserandino, writer- butyoudontlooksick.com will be a featured speaker during the upcoming National Invisible Chronic Illness Awareness Week, September 10-16, 2007.
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Continue reading "Christine Miserandino will be a featured speaker for Invisible Chronic Illness Awareness Week" »
See Christine's Latest television appearance.
Keeping Kids Healthy (PBS and American Public Television) Nationally Syndicated
Won a 2005 New York Emmy Award (11/ 2005) re-aired (2/ 2006, 3/ 2006, 6/2006)
EPISODE 401 - Lupus: A Medical Mystery
*Check your local listings for air dates and times.
What happens when you know your child is sick, but no one can tell you what's wrong...sometimes for years? Lupus, a debilitating disease, is still a medical mystery. Join Dr. Winnie King as we attempt to unravel this mystery on a full-show episode of Keeping Kids Healthy. Without a single known cause, no simple test for diagnosis and symptoms so vague and so varied, Lupus can often elude the doctors trying to detect it. But learning about Lupus is actually the first step in detecting it. You'll hear from a young woman, Christine Miserandino who lived with Lupus since she was 14 but wasn't diagnosed until 22;. Hear the story of how one mother refused to give up until her daughter's condition was diagnosed and hear a Lupus expert discuss symptoms, treatments, care and the latest news on medical advances in Lupus research.
Continue reading "Television: Keeping Kids Healthy: Lupus A Medical Mystery - Featuring Christine Miserandino" »
Product Reviews are an excellent way to get the word out about a unique product or business. They work much like a testimonial, which we all know is a great promotional tool, but product reviews can actually be considered a "step up" from testimonials, since they go into more detail and are by far more personal.
Continue reading "Increase Your Website Traffic with Product Reviews at ButYouDontLookSick.com" »
Keeping Kids Healthy (PBS) Nationally Syndicated
Won a 2005 New York Emmy Award (11/ 2005) re-aired (2/ 2006)
Continue reading "Media: Television: Keeping Kids Healthy" »
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