Special Announcement: The National Lupus Alliance Patient Survey

Special Announcement: The National Lupus Alliance Patient Survey

Lupus. The word itself may be more widely known today, thanks to Dr. House, but what it is, how it affects those living with it and how it has constantly been ignored, misunderstood and generally overlooked by the public, pharmaceutical companies and researchers is not. In the last ten years

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Lupus Walk Update: Sometimes when it rains, you need to make rainbows! TEAM CHRISTINE raised $10,145 for the Lupus Walk

Lupus Walk Update: Sometimes when it rains, you need to make rainbows! TEAM CHRISTINE raised $10,145 for the Lupus Walk

I am so happy to announce that TEAM CHRISTINE raised $10,945 for the Lupus Walk!!!! Thank you everyone for your donations and support! As, of now we are the top fundraising team for this walk as we have been for many years. What a great legacy and tradition. We still have some checks comin in-- so h

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Reese Witherspoon announced that she is launching an effort to end violence against women.

Wear the necklace that could change the world. Want to help a great cause? It is easy, buy a necklace or bracelet for yourself or for a friend! Hollywood actress Reese Witherspoon is spearheading a new campaign to end violence against women. "The Walk The Line" movie star, a global ambassador for

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Be an e-Advocate! New York State is considering two important pieces of legislation for people living with lupus.

If you live in NY state, there are two important pices of legistration that needs your support to pass. There is a very easy way to get involved. Just follow the directions below to send a letter to your representative. We even include a sample letter. It can not be any easier to get involved and be

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Please help support me and our team for the Lupus Walk 2008- only 2 Weeks Away!

The Lupus Walk is 2 weeks away!!! Please help us reach our goals. EVERY donation helps! http://www.firstgiving.com/cdonato My Family has been walking for 13 years in the walk along for Lupus on Long Island. Last year my team raised close to $10,000! With everyone's help we are hoping to beat that g

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Christine Miserandino will be speaking during the kick off of National Invisible Chronic Illness Awareness Week

Christine Miserandino of butyoudontlooksick.com, and Lisa Copen of Restministries.org will "kick off" National Invisible Chronic Illness Awareness Week Monday September 8 at 12 EST. Click here for a time zone converter. Seminars will be conducted via Blog Talk Radio FREE and is easy to particpate.

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In the News: CVS has now made it even easier to Donate to Charity

The Easter Seals donation card, available now at all 6,300 CVS/pharmacy stores in 44 states, is the first and only donation card available in retail stores. The Easter Seals card has been out on the market for about six weeks now, and is stocked alongside gift cards for places such as The Home Depot

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Thank you to the friends/ supporters of the Lupus Gala Brunch!

Thank you to the friends of Christine and ButYouDontLookSick.com for donating items for the fundraising raffle at the Lupus Gala Brunch this past weekend. Your generosity helped make the event a huge success! Please support the following companies, and if you do shop from them, please tell them that

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A Husband’s Perspective – Lupus Advocacy Day – Washington, DC

I am proud of my wife, Christine. I am proud of the work she does for the Lupus Alliance, this website, and for our family. I am proud of her passion to help others, and the impact she has had on so many people through her speaking engagements, and of course, through ButYouDontLookSick.com. I had

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Project Linus: My Blankie and Me

Linus Van Pelt, the security blanket donning Peanuts character was once known to say, “I know there is a lesson to be learned here somewhere, but I don't know what it is.” Linus obviously didn’t know how right he was when he uttered that remark while clutching his blankie, thumb in mouth. Life

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