Why I Participate in the Lupus Walk, Now it is My Mission. Please help support.

Why I Participate in the Lupus Walk, Now it is My Mission. Please help support.

It is the middle of October and you know what that means to us here at Butyoudontlooksick.com and in my family... It is Lupus Awareness month. For this month, I try to post mostly about Lupus or lupus related stories, reviews etc. I also spend a lot of time talking about my efforts with the Lupus Wa

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30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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The Lupus Dating Game

The Lupus Dating Game

My family once joked with me that I only kept guys around for a 6 month to a year and a half rotation. My mother even joined in the fun and told me not to bring someone home, unless I was “serious”, because I sure had a lot of people who were “friends”. They claimed I had an emotional spring

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The Story Behind The Smile, The Outlook Behind The Outfit *Update

The Story Behind The Smile, The Outlook Behind The Outfit *Update

Do you dress to impress or do you dress how you really feel? That quickly became the big question for me yesterday on twitter. What started as a joke between some new friends I made, really had me thinking. I am cheduled to speak at the #140conference in NYC about Lupus, health related support

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The Spoon Theory written by Christine Miserandino

The Spoon Theory written by Christine Miserandino

Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability.  Click HERE to download "The Spoon Theory" in PDF format. The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in

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Giving Back Would Be the Best Christmas Gift of All

Giving Back Would Be the Best Christmas Gift of All

Last week, my husband Frank, our daughter Olivia, and I started getting out our holiday decorations. We were very excited to celebrate, because last year, lupus quite simply stole our holiday. We were determined that this year was going to be different. We decided to play Christmas music, dance and

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Historic and Hopeful Day for Patients living with Lupus - FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

Historic and Hopeful Day for Patients living with Lupus – FDA Advisory Committee’s Recommendation to Approve Benlysta for Lupus

The U.S. FDA Arthritis Advisory Committee voted 13 to 2 to recommend approvalof the treatment developed by Human Genome Sciences (HGS) and GlaxoSmithKline Tuesday, November 16, 2010 The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations are pleased wit

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Yes, I Still Have Lupus.

Yes, I Still Have Lupus.

Sunday October 17th is the annual Lupus Walk fundraiser for the Lupus Alliance in my local area. I am a person living with Lupus. My family and I pride ourselves on being one of the top fundraising teams every year. We make phone calls or send email messages to family, friends and co-workers. We eve

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My Roulette Kinda Life

My Roulette Kinda Life

I remember going to the bright lights of Atlantic City and watching people play roulette. I would just walk around and watch people. I liked to watch the “high rollers” because they seemed so carefree with amounts of money that would make me sick, if I lost. For a moment, I would love to be able

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A Lesson in Adapting from my Dog

A Lesson in Adapting from my Dog

I learned a few lessons in the past few years about "adapting" and believe it or not I learned some of it from walking my dog, Sparky. A very long story short-- my puppy broke his little leg when I first got him. Now you would look at him and never know the difference. He jumps, walks, licks and run

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