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Advice on Hip Subluxations?
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Smithtopher
Spoonie in Training
Joined: Sun Nov 18, 2007 4:15 am Posts: 100 Location: New Zealand
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 Advice on Hip Subluxations?
So just in this past two weeks my hips have been subluxing or dislocating, I'm still not sure what is what. While I could always do this at will now they are starting to do it without my choice. Generally it happens after a lot of walking or that type of thing and its fairly painful.
Mostly I was just hoping some of my fellow hypermobile people might be able to give me some advice on what to do? Is there anything I can do except being more careful with my body?
_________________ -Chronic Daily Migraines-Probable EDSIII- Minor OCD and some sort of anxiety thing-
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| Fri Jan 04, 2008 7:02 pm |
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cynner68
Message Board Host
Joined: Sun Apr 23, 2006 2:20 pm Posts: 6462 Location: New Braunfels, Texas
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Rest when you can.  Do you use a cane or any assistive device for walking? I had to start using a cane most of the time in the past few months because of my hips. I did get prescribed an electrical muscle stimulator as well as a TENS unit for the pain. They help- with other pains as well. Have you seen a doc about this specifically? You may need testing and/or PT to help.
Good luck and let us know how you're doing. 
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| Fri Jan 04, 2008 10:04 pm |
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TheDysautonomiaGirl
Message Board Host
Joined: Sat Jan 07, 2006 5:18 pm Posts: 6372 Location: Pennsylvania
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I'm sorry your hips have started dislocating or subluxing. Mine haven't done so yet *knock on wood* so I really don't have any advice for you other then after it happens and you've got it back in place to rest a bit. If you don't rest after a subluxtion or dislocation chances are it will pop back out.
((hugs))
_________________ Gwendolyn ~21~ POTS & NCS, Ehlers- Danlos Syndrome (Hypermobility & Classical), CFS, GERD, Fibromyalgia, Gastroparisis, Costochondritis, Pelvic Floor Spasms, Type II Diabetes, & Hypothyroid
"Be pushed by your dreams, not held back by your illness!" -Me
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| Sat Jan 05, 2008 1:59 am |
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kmoncky
Plastic Spoon
Joined: Wed Mar 29, 2006 5:38 pm Posts: 3314 Location: California, US
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Hips are my main problem.... I'm still recovering from a major hip dislocation that landed me in the hospital for almost three weeks back at the end of October. There are lots of physical therapy exersizes you can do to help build the muscles that hold the hips in place so they can't come out as easy, bicycling (especially if you can get your hands on a recumbent or a stationary recumbent) is GREAT at building those muscles and personally my favorite. I also have an SI Belt that I wear around my hips to help stabilize them to hold them in place better. Your doc can help you get in touch with a physical therapist who can help you with all that.
_________________ EDS type 3, Obstructive Sleep Apnea, Fibro, Hypothyroidism, Bipolar Disorder, IBS, tendonitis, bursitus, TMJ, OCD, MVP, POTS and some other stuff "All doctors are guilty until proven innocent!"
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| Sat Jan 05, 2008 2:28 am |
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Sheepy Rach
Spoonie in Training
Joined: Sun Dec 09, 2007 11:58 am Posts: 23 Location: UK
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I have lots of trouble with my hips. They sublux more and more frequently.
The helpful (not) orthopaedic bloke saw said "your hips sublux and are probably very painful - try to avoid doing it..." How much was he paid for that?????
I think the most helpful thing for me, as kmoncky said, is PT to help build up muscles in the thigh-ish area to hold hips in place better.
Good luck!!
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| Mon Jan 07, 2008 3:16 pm |
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Smithtopher
Spoonie in Training
Joined: Sun Nov 18, 2007 4:15 am Posts: 100 Location: New Zealand
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thanks everyone, the support and advice has been helpful as always  I reckon I will just build up my leg and hip muscles a bit, sounds like its worth a shot at least and shudnt be to hard.
_________________ -Chronic Daily Migraines-Probable EDSIII- Minor OCD and some sort of anxiety thing-
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| Mon Jan 07, 2008 7:44 pm |
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kmoncky
Plastic Spoon
Joined: Wed Mar 29, 2006 5:38 pm Posts: 3314 Location: California, US
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If you venture out on an exersize plan yourself... be very careful and don't put yourself in any positions that make you feel like you have a joint that is unstable or that could lead to injury. Before I got plugged into my awesome PT that I have now, I did pilates. I know there is mixed reviews on pilates with EDS'ers, but what I always recommend is that you get a good dvd or two (the windsor pilaties videos almost always show one person doing a "modified" version of the exersize for those who need to play it more safe or can't do the normal exersize) and pick a few of the routines that you like, feel good and safe and that build those core muscles. It really is best if you can have a PT set you up with a routine first, but if you can't, I have actually found that a lot of the pilaties moves and exersizes that my various PT's have given me to do. Good luck and be safe!
_________________ EDS type 3, Obstructive Sleep Apnea, Fibro, Hypothyroidism, Bipolar Disorder, IBS, tendonitis, bursitus, TMJ, OCD, MVP, POTS and some other stuff "All doctors are guilty until proven innocent!"
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| Tue Jan 08, 2008 4:24 am |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Tue Jan 08, 2008 3:49 pm |
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