Board index
* Login   * Register  
* FAQ    * Search
Welcome to the ButYouDontLookSick.com message board, blog, and chat room. You will need to REGISTER before you can begin posting or chatting.  Registering for our message boards will automatically set your account up for chat room access.  Please click here to visit our home page. Helpful abbreviations can be found here.
View unanswered posts | View active topics
      

All times are UTC - 5 hours



Post new topic Reply to topic  [ 8 posts ] 
Author Message
 Post subject: Advice on Hip Subluxations?
PostPosted: Fri Jan 04, 2008 7:02 pm 
Offline
Spoonie in Training
User avatar

Joined: Sun Nov 18, 2007 4:15 am
Posts: 100
Location: New Zealand
So just in this past two weeks my hips have been subluxing or dislocating, I'm still not sure what is what. While I could always do this at will now they are starting to do it without my choice. Generally it happens after a lot of walking or that type of thing and its fairly painful.

Mostly I was just hoping some of my fellow hypermobile people might be able to give me some advice on what to do? Is there anything I can do except being more careful with my body?

_________________
-Chronic Daily Migraines-Probable EDSIII- Minor OCD and some sort of anxiety thing-


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jan 04, 2008 10:04 pm 
Offline
Message Board Host
Message Board Host
User avatar

Joined: Sun Apr 23, 2006 2:20 pm
Posts: 7228
Location: New Braunfels, Texas
Blog: View Blog (2)
Rest when you can. :? Do you use a cane or any assistive device for walking? I had to start using a cane most of the time in the past few months because of my hips. I did get prescribed an electrical muscle stimulator as well as a TENS unit for the pain. They help- with other pains as well. Have you seen a doc about this specifically? You may need testing and/or PT to help.
Good luck and let us know how you're doing. :) :arrow:


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jan 05, 2008 1:59 am 
Offline
Message Board Host
Message Board Host
User avatar

Joined: Sat Jan 07, 2006 5:18 pm
Posts: 6423
Location: *Pennsylvania*
Blog: View Blog (1)
I'm sorry your hips have started dislocating or subluxing. Mine haven't done so yet *knock on wood* so I really don't have any advice for you other then after it happens and you've got it back in place to rest a bit. If you don't rest after a subluxtion or dislocation chances are it will pop back out.

((hugs))

_________________
Gwendolyn
~21~


Dysautonomia, Ehlers- Danlos Syndrome (Hypermobility and Classical), CFS, GERD, Fibromyalgia, Gastroparisis, Costochondritis, Pelvic Floor Spasms, Type II Diabetes, and Hypothyroid

A special YouTube Channel updated every weekday by 5 Dysautonomic's! http://www.youtube.com/user/5awesomepotsies


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jan 05, 2008 2:28 am 
Offline
Plastic Spoon
User avatar

Joined: Wed Mar 29, 2006 5:38 pm
Posts: 3364
Location: California, US
Hips are my main problem.... I'm still recovering from a major hip dislocation that landed me in the hospital for almost three weeks back at the end of October. There are lots of physical therapy exersizes you can do to help build the muscles that hold the hips in place so they can't come out as easy, bicycling (especially if you can get your hands on a recumbent or a stationary recumbent) is GREAT at building those muscles and personally my favorite. I also have an SI Belt that I wear around my hips to help stabilize them to hold them in place better. Your doc can help you get in touch with a physical therapist who can help you with all that.

_________________
EDS type 3, Obstructive Sleep Apnea, Fibro, Hypothyroidism, Bipolar Disorder, IBS, tendonitis, bursitus, TMJ, OCD, MVP, POTS and some other stuff
"All doctors are guilty until proven innocent!"


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 07, 2008 3:16 pm 
Offline
Spoonie in Training

Joined: Sun Dec 09, 2007 11:58 am
Posts: 23
Location: UK
I have lots of trouble with my hips. They sublux more and more frequently.

The helpful (not) orthopaedic bloke saw said "your hips sublux and are probably very painful - try to avoid doing it..." How much was he paid for that?????

I think the most helpful thing for me, as kmoncky said, is PT to help build up muscles in the thigh-ish area to hold hips in place better.

Good luck!!


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jan 07, 2008 7:44 pm 
Offline
Spoonie in Training
User avatar

Joined: Sun Nov 18, 2007 4:15 am
Posts: 100
Location: New Zealand
thanks everyone, the support and advice has been helpful as always :) I reckon I will just build up my leg and hip muscles a bit, sounds like its worth a shot at least and shudnt be to hard.

_________________
-Chronic Daily Migraines-Probable EDSIII- Minor OCD and some sort of anxiety thing-


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 08, 2008 4:24 am 
Offline
Plastic Spoon
User avatar

Joined: Wed Mar 29, 2006 5:38 pm
Posts: 3364
Location: California, US
If you venture out on an exersize plan yourself... be very careful and don't put yourself in any positions that make you feel like you have a joint that is unstable or that could lead to injury. Before I got plugged into my awesome PT that I have now, I did pilates. I know there is mixed reviews on pilates with EDS'ers, but what I always recommend is that you get a good dvd or two (the windsor pilaties videos almost always show one person doing a "modified" version of the exersize for those who need to play it more safe or can't do the normal exersize) and pick a few of the routines that you like, feel good and safe and that build those core muscles. It really is best if you can have a PT set you up with a routine first, but if you can't, I have actually found that a lot of the pilaties moves and exersizes that my various PT's have given me to do. Good luck and be safe!

_________________
EDS type 3, Obstructive Sleep Apnea, Fibro, Hypothyroidism, Bipolar Disorder, IBS, tendonitis, bursitus, TMJ, OCD, MVP, POTS and some other stuff
"All doctors are guilty until proven innocent!"


Top
 Profile  
 
 Post subject:
PostPosted: Tue Jan 08, 2008 3:49 pm 
Offline
Crystal Spoon
User avatar

Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9105
Location: Connecticut...part-time Texan...and French at heart :)
Blog: View Blog (1)
I have problems moreso with my left hip.

Good luck :arrow: :arrow: :arrow: :arrow: :arrow:

_________________
~Stephanie~

Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.

I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks :arrow:


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 8 posts ] 

All times are UTC - 5 hours


Who is online

Users browsing this forum: Hazen and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  




Please click here for our Privacy Policy

Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group