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 Medical Pictures of EDS Patients 
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Baby Spoon
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Joined: Fri Jun 22, 2007 10:12 am
Posts: 297
Post Medical Pictures of EDS Patients
Stumbled across this photo album on webshots: http://home-and-garden.webshots.com/album/342880556ABGlPZ

Thought it may be of interest.

EDIT: This is for reference only... BYDLS takes no responsibility for anything that may be posted on the linked website nor should it be used in aide of diagnosis. Please see a physician for proper diagnosis procedures

WARNING: This pictures may seem grotesque to some, so proceed with caution. Do not attempt to replicate anything you may see in these pictures as it may lead to serious injury.

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Dee


Sun Sep 30, 2007 2:52 am
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Plastic Spoon
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Joined: Wed Dec 27, 2006 3:07 pm
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Location: South Carolina - The LowCountry
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Thanks for posting this!
I sort of understood what happens, but not fully. This got me to understand completely and it looks very painful!

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~ Carol

Fibromyalgia, osteoarthritis, DDD, bruxism, chronic depression, GAD, recovered from endometriosis


Sun Sep 30, 2007 5:15 am
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Soup Spoon

Joined: Wed Apr 26, 2006 8:45 am
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Location: London, UK
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these are fantastic!!!!!!
top find d.ellis!

mods- can we have this as a 'sticky', pretty please!!!
sooooo useful for peops to figure out whether they are hypermobile/have stretchy skin etc...


Sun Sep 30, 2007 8:43 am
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Plastic Spoon

Joined: Sat Oct 28, 2006 5:27 pm
Posts: 4485
Location: New Jersey
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Yeowch!!!!

I didn't go through all of them, but those are interesting!! I tested myself on a few of them and I'd say generally I'm okay, although I do have one or two flexible areas and the skin on the top of my hands is a bit stretchy (but probably no more than what's considered normal).

*Whew*

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Christine

Me: Congenital Rubella Syndrome and friends: Visual/hearing impairment, anxiety/depression, processing deficits, MVP, nasal & skin (?) allergies, lots of knots
DH: Diabetes type 2, sleep apnea, HBP, high cholesterol


Sun Sep 30, 2007 10:55 am
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Spoonie in Training
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Wow those are great pics!

Tho I thought that lots of that was normal...I guess im just abnormal!

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Cat xx


Sun Sep 30, 2007 11:08 am
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That's probably the best, and biggest collection of EDS pics I've seen so far. And I agree: could someone make it sticky, please? :)

~Ioma

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Ehlers-Danlos syndrome, severe and progressive dysautonomia, legally blind (born missing right eye and bad left cornea, had transplant at 5 wks of age but rejected), autism spectrum disorder.

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Sun Sep 30, 2007 5:25 pm
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Plastic Spoon
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Joined: Sat Nov 11, 2006 5:54 pm
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Location: Vancouver, BC, Canada
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Great collection of pictures. I can identify with a lot of them, either in myself or other family members. I found myself thinking, "That's an ankle subluxation? I do that all of the time!" :shock:

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~ Connie ~

“Take the first step in faith. You don't have to see the whole staircase, just take the first step.” Martin Luther King Jr.


Sun Sep 30, 2007 7:34 pm
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Soup Spoon

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Location: London, UK
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"....I though that was normal"
"oh i do that all the time"

:D yep I think until we are dxed we all think 'that's normal'...

and the 'ultimate EDS pics' site would indeed be one where there are comparison pics i.e this is normal, this is mild hypermobility/skin hyperstrechism, this is 'extreme'.


Mon Oct 01, 2007 10:24 am
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Baby Spoon
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Quote:
"....I though that was normal ... oh i do that all the time" - yep I think until we are dxed we all think 'that's normal'...


Yup

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Dee


Last edited by d.ellis on Thu Dec 06, 2007 10:36 am, edited 1 time in total.



Wed Oct 03, 2007 2:59 am
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Plastic Spoon
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I don't know about the arm pronation/supination pictures. I know my arms look like that. The rest - there are various degrees and sorts of EDS shown, some of which are identified specifically as to the type of EDS, most not.

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~ Connie ~

“Take the first step in faith. You don't have to see the whole staircase, just take the first step.” Martin Luther King Jr.


Wed Oct 03, 2007 4:23 am
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Soup Spoon

Joined: Wed Apr 26, 2006 8:45 am
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Location: London, UK
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you're of course right dee, even after dx....
cause nobody bloommin checks us from head to toe and tells us what all is odd...I've only recently found out that both my shoulders sublux, when I started getting numbness/icy cold/all white probs in arm and hand...
I really hate the 'we deal with probs as and when they arise' instead of let's see what's wrong and see whether we can try and avoid probs in future...

and nope! :D these things are not normal.
pic1 I cant do at all...despite being a bonafide EDSer :lol:
pic 2- yep, know that one well...


Wed Oct 03, 2007 9:13 am
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Spoonie in Training
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gila wrote:
"....I though that was normal"
"oh i do that all the time"

:D yep I think until we are dxed we all think 'that's normal'...



Ah.. that explains it then.. as I am still without any diagnosis of anything!

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Cat xx


Wed Oct 03, 2007 11:18 am
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Crystal Spoon
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Location: Connecticut...part-time Texan...and French at heart :)
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i happened upon these a long time ago as i have a webshots account.

I can do a LOT of that...and no...most ppl can't twist their arm like that!!!!

when i was dxed i just gave my geneticist a show of all my tricks that i had in my bag from showing friends and my mom :lol:

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~Stephanie~

Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.

I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks :arrow:


Wed Oct 03, 2007 3:29 pm
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Plastic Spoon
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I can do a number of these, but not when it comes to the more extreme things like bending my pinky totally backwards. Ouch! When I was younger I could easily cross my ankles behind my neck, and even now I can still get my heels to touch. I could never ever ice skate because my ankles would roll every time. No fun at all when you live in an area where it's winter at least 6 months out of the year and there are outdoor rinks in every neighborhood :(

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~ Connie ~

“Take the first step in faith. You don't have to see the whole staircase, just take the first step.” Martin Luther King Jr.


Wed Oct 03, 2007 4:09 pm
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Baby Spoon
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The pinky thing seems to provoke a visceral reaction in many people. For me, it's a fun, easy trick. I can't do any other trick easily - do I win an award for least-talented here? hairy persons are pictured, so being male isn't as much of an excuse as I thought - and some of the photos gross me out. If I had permission, I'd take that pinky picture and make it my avatar :P


Sun Oct 07, 2007 8:28 pm
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