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TinkerbellK
Soup Spoon
Joined: Fri Mar 16, 2007 9:14 am
Posts: 824
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 how tall are you? ok, it seems people with EDS tend to be shorter than the average person... so, how tall are you?
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~K~
EDS: Hypermobility, occult tethered cord?, cervical-cranio instability, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems, some new arthritis thing...
It's kind of fun to do the impossible" ~Walt Disney
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| Wed Apr 23, 2008 10:25 am |
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TheDysautonomiaGirl
Message Board Host
Joined: Sat Jan 07, 2006 5:18 pm
Posts: 6381
Location: Pennsylvania
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Re: how tall are you? 5'2"
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Gwendolyn
~21~
POTS & NCS, Ehlers- Danlos Syndrome (Hypermobility & Classical), CFS, GERD, Fibromyalgia, Gastroparisis, Costochondritis, Pelvic Floor Spasms, Type II Diabetes, & Hypothyroid
"Be pushed by your dreams, not held back by your illness!" -Me 
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| Wed Apr 23, 2008 10:29 am |
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Seyrenia
Table Spoon
Joined: Fri Nov 17, 2006 10:05 am
Posts: 1392
Location: Somewhere in Germany
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Re: how tall are you? 168 cm (5'5"), officially. Last time someone checked professionally, however, I turned out to be 2 cm shorter for some reason. Pride dictates to ignore that, of course. 
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Endometriosis, EDS (not typed yet), migraines, allergies and plenty more (including depression). גם זה יעבור
"The wonder of cells is not that things occasionally go wrong, but that they manage everything so smoothly for decades at a stretch." - Bill Bryson, A Short History of Nearly Everything
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| Wed Apr 23, 2008 10:57 am |
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cynner68
Message Board Host
Joined: Sun Apr 23, 2006 2:20 pm
Posts: 6462
Location: New Braunfels, Texas
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Re: how tall are you? No definite EDS Dx at this point, but symptomatic...so 5'4" and 1/2! 
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Click me.> Nobody puts Baby in a corner!
~Thanks for the memories, Patrick.
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| Wed Apr 23, 2008 12:15 pm |
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iGraham
Spoonie in Training
Joined: Fri Apr 11, 2008 8:16 am
Posts: 215
Location: Lock Teign, Glen Devon, Scotland
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Re: how tall are you? ... 6 ft 1...
^^;;
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Neuropathy, iBuprofen Allergy, weird weird scar tissue
Diclofenac for whatever, Amitriptyline and Tramadol when it really hurts.
Some say, he wrestles wild animals in his office, and that his deodorant comes from a live skunk.
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| Wed Apr 23, 2008 2:49 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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Re: how tall are you? 5 feet (one office says 4'11.9")
I'm...miniature.
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks 
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| Wed Apr 23, 2008 2:56 pm |
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TestyTiger
Soup Spoon
Joined: Mon Mar 24, 2008 4:48 pm
Posts: 823
Location: RI
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Re: how tall are you? 5'4" 
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~Kerrilynn
"Expecto Patronum!!!!"
" I postpone death by living, by suffering, by error, by risking, by giving, by loving. " ~Anais Nin
"Everything has been figured out, except how to live." ~Sartre
My Website *UPDATED*
Everyday Blog
Art Blog
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| Wed Apr 23, 2008 3:07 pm |
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TinkerbellK
Soup Spoon
Joined: Fri Mar 16, 2007 9:14 am
Posts: 824
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Re: how tall are you? ok, how many of us got labeled with "failure to thrive" or stopped growing as infants? i was ALWAYS very tiny and underweight... in fact, it took me 3 years to triple my birth weight!
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~K~
EDS: Hypermobility, occult tethered cord?, cervical-cranio instability, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems, some new arthritis thing...
It's kind of fun to do the impossible" ~Walt Disney
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| Wed Apr 23, 2008 5:13 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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Re: how tall are you? I was always small and underweight...like I said I'm miniature...
I stopped growing at 12...Dr. F said that was a bit early...
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Wed Apr 23, 2008 6:45 pm |
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TestyTiger
Soup Spoon
Joined: Mon Mar 24, 2008 4:48 pm
Posts: 823
Location: RI
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Re: how tall are you? Well, im not exactly short, but I was a small baby. I don't know about failure to thrive or anything. At full term I was only 6lbs and was always very small. I stopped growing at about 13.
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~Kerrilynn
"Expecto Patronum!!!!"
" I postpone death by living, by suffering, by error, by risking, by giving, by loving. " ~Anais Nin
"Everything has been figured out, except how to live." ~Sartre
My Website *UPDATED*
Everyday Blog
Art Blog
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| Wed Apr 23, 2008 6:52 pm |
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RSDinOz
Serving Spoon
Joined: Sun Apr 06, 2008 7:20 pm
Posts: 2796
Location: Australia
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Re: how tall are you? 171cm (5'6")...
And I was a HUGE baby (9lb 61/4oz and full term)...
EDS doesn't really effect height (but I am sure some kinds could but not by too much)...
And I was NEVER failure to Thrive or Stopped Growing but I was thin up until about age 20+ (Then my body fell apart and becasue I couldn't get about well I put on weight (I am now about 20-30kg's overweight, which is NOT great fo rmy knees and legs etc, but it is VERY hard to lose weight when you can't exercise))...
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Dx -RSD/CRPS1; Migraines, CDH's; Hearing Loss; Hypermobility; HLA B27+; Multiple Allergies; Eczema; IBS; Raynaud's; JRA; Seronegative Spondyloarthritis; Tinnitus; Myoclonus/ Fasciculations and More...
PLEASE Check out my Scroll for my mature Dragons and Eggs etc on the Parade
<- Please Click on My Eggs & Hatchlings
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| Wed Apr 23, 2008 10:42 pm |
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Fiona-Jane
Spoonie in Training
Joined: Mon Mar 17, 2008 8:03 pm
Posts: 66
Location: London (near Heathrow Airport), UK
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Re: how tall are you? i was a tiny baby that needed to wear doll's clothes as baby clothes were far too big for me! i was the smallest in my class until i was about 7, then i caught up and prompty stopped growing at 10 or 11 years old as i started puberty at 6 (and got my growth spurt at 7...). i'm now 4'9". on my medical notes i'm a 'person of short stature'.  thats a bit nicer than my usual labe of 'proportionate dwarf'! (the upper hight limit for a dwarf is over 4'10") fi xx
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EDS (type III), Sleep disorder, IBS, Gastro-Oesophageal reflux, Autonomic Instability, Chronic Pain & Fatigue, Fibromyalgia, IUGR, SJD, TMJD & SPD, Dermatitis, Folate Deficient Anaemia, Multiple Joint Dysplasia, Gastroparesis, Functional Gastritis, Pan Colonic Dysmotility, Bilateral Siatica & others
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| Thu Apr 24, 2008 12:25 pm |
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iGraham
Spoonie in Training
Joined: Fri Apr 11, 2008 8:16 am
Posts: 215
Location: Lock Teign, Glen Devon, Scotland
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Re: how tall are you? O.O Puberty at SIX!? That must not have been fun. 
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Neuropathy, iBuprofen Allergy, weird weird scar tissue
Diclofenac for whatever, Amitriptyline and Tramadol when it really hurts.
Some say, he wrestles wild animals in his office, and that his deodorant comes from a live skunk.
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| Thu Apr 24, 2008 1:53 pm |
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stacekins
Volunteer Staff Member
Joined: Mon Jun 11, 2007 11:48 pm
Posts: 955
Location: Michigan
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Re: how tall are you? I'm somewhere between 5'8" and 5'9". I was always tall and skinny when I was a kid and then I went from tallish for my age to jumping up 8" over once summer. Then my body started falling apart and I starting gaining weight cause I could no longer exercise.
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Staci Jo
*22*
Life's not waiting for the storm to pass, its learning to dance in the rain. (but gee I sure with the storm would go away for just a little bit!!!)
Classical EDS, Celiac Disease, FMS, PCOS, IBS, Migraines, GI problems, Bulging disk & DDD * L4-L5, Depression, Anxiety
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| Thu Apr 24, 2008 6:02 pm |
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Thyre
Spoonie in Training
Joined: Thu Dec 06, 2007 11:34 am
Posts: 4
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Re: how tall are you? My mother, sister, aunt and myself are about 5'7 - 6'0, so can't say I agree with EDS patients being short : )
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Having EDS has forced me to have a flexible oulook on life!
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| Thu Apr 24, 2008 6:06 pm |
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