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 Post subject: Exercise
PostPosted: Tue Jun 16, 2009 4:17 pm 
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Spoonie in Training
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Posts: 189
What do you do for exercise? I'm terribly out of shape and a bit overweight and I need to get into better shape. I cannot swim because there is no where near me to do it. There is a Curves and I was thinking about that. I've seen some pretty old ladies there so if there are things they can do there, there must be things an EDSer can do too.

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Ehlers-Danlos Syndrome 3, Fibromyalgia, Dural Ectasia, Degenerative disc disease and bulging discs, minor Tricuspid and Mitral valve insufficiency, chronic daily headache, acid reflux, sleep apnea, hypovitaminosis-D

Testing for: Dysautonomia


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 Post subject: Re: Exercise
PostPosted: Thu Jun 18, 2009 5:46 am 
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Dessert Spoon

Joined: Wed Apr 26, 2006 8:45 am
Posts: 676
Location: London, UK
anything that's low impact and where there's attention paid to posture and doing things 'right'
one of the best things is pilates- small movements and all about control/doing things 'right'- particularly good as the main thing about pilates is how it works the core muscles- the little 'inner' muscles that are supposed to do the 'holding'-

t'ai chi can be good- but also just 'simple' (oh if only it always was so simple...) walking and cycling

if you cant afford to go to pilates classes- you could also see a physical therapist and ask for core stability exercises- always a v good thing to start off with those

and with any exercise you are starting, particularly if you also have a chronic pain syndrome, start off sloooooooowly!!!!!
so dont go for a full class or an hour's worth of cycling, walking- start with 10/15 mins a couple of times a week and slowly build up- or depending on your fitness and eds probs you could do 10/15mins, have a little rest, then another 10/15 mins-

as with everything EDS- easy does it!
xxg


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 Post subject: Re: Exercise
PostPosted: Sat Jul 04, 2009 1:05 am 
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Spoonie in Training
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Joined: Sat Jun 24, 2006 11:27 am
Posts: 158
depending on your dislocations and your stability level... thats really going to dictate what you should do and especially where you should start.

Examples of where I started when i was so bad i had to be brought home from college... Isometrics. best thing about these are you can choose your resistance level even with gravity. If you lay down and do the isometrics... least amount of gravity working against you. Sit in a chair, you have medium amount, stand... max amount.

The nice thing about isometrics is you're turning on your muscle, getting it to work, but you get to dictate the position your joint is in, and that it stays that way. If you flex your muscle too hard and your joints are very lax, you do run the risk of pulling the joint out... this is why it is -very- important not to over develop one muscle group. If you train one group of muscles, you need to train the opposing muscle group. Easiest example of this that most people know are the biceps and triceps. they oppose each other.

Therabands are also great ways to work out with a bit of resistance, what else... easy walking depending on your knees.

Psst... also i've heard that cleaning burns *tons* of calories (which would explain why whenever I go to clean like... hard core clean i end up sweating like all get out and am gross by the end of it XD) hahahaha just kidding. but hey, whatever your motivations are.

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I have learned to hold on to things loosely, because when i hold on too tight, God has to pry them out of my hands, and that hurts!

Do not meedle in the affairs of dragons, for you are crunchy and good with ketchup.

Diagnosed with EDSIII June 2006


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 Post subject: Re: Exercise
PostPosted: Sat Jul 04, 2009 11:33 am 
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Spoonie in Training
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Joined: Wed Apr 29, 2009 1:30 pm
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Location: Ontario, Canada
lol * KitKat... I never thought to take that angle with her before... cleaning :) There, Kherome, now you have a reason to clean ;)

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IBS-D, anxiety, depression, hypoglycemia, pernicious anemia, vertebral subluxation, agoraphobia


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 Post subject: Re: Exercise
PostPosted: Sat Jul 04, 2009 5:56 pm 
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Spoonie in Training
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Posts: 189
No thanks, cleaning still isn't going to work for me!

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Ehlers-Danlos Syndrome 3, Fibromyalgia, Dural Ectasia, Degenerative disc disease and bulging discs, minor Tricuspid and Mitral valve insufficiency, chronic daily headache, acid reflux, sleep apnea, hypovitaminosis-D

Testing for: Dysautonomia


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 Post subject: Re: Exercise
PostPosted: Sun Jul 05, 2009 1:08 am 
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Baby Spoon
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I used to work at a Curves, and we were able to modify the workout for pretty much everybody. (I don't know if we had any EDS members, but I have hypermobility issues.) The workout is low impact and works complementary muscle groups at the same time. If your Curves is a good one, they'll be able to make any modifications to the workout that you need them to and teach you how to use the equipment the right way so that you don't get hurt using it.

If you have any questions about Curves or the workout program, feel free to PM me.

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~Ruminari, 24
Allergies, Myopia, Patellofemoral Syndrome, Hypermobility, Lumbar Arthritis, Unspecified Connective Tissue Disorder, Fibromyalgia, Myofascial Pain, & more


"And not only so, but we glory in tribulations also: knowing that tribulation worketh patience; and patience, experience; and experience, hope." -Romans 5:3-4


Last edited by Ruminari on Sat Aug 15, 2009 1:54 am, edited 2 times in total.

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 Post subject: Re: Exercise
PostPosted: Sun Jul 05, 2009 6:40 pm 
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Serving Spoon
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Joined: Sun Dec 21, 2008 8:46 pm
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Location: Denver area, CO USA
Get thee to a pool :D

Any kind of workout done in water will be lower impact. You can swim, which is good for all over body workout, or do water walking or aerobics.

For dry land, i do yoga and stretching.

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Fibro... and various other supporting cast.

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I have this damned disease... it does NOT have me!


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 Post subject: Re: Exercise
PostPosted: Sun Jul 05, 2009 9:26 pm 
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Spoonie in Training
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As I said in my original post, swimming isn't an option for me.

_________________
Ehlers-Danlos Syndrome 3, Fibromyalgia, Dural Ectasia, Degenerative disc disease and bulging discs, minor Tricuspid and Mitral valve insufficiency, chronic daily headache, acid reflux, sleep apnea, hypovitaminosis-D

Testing for: Dysautonomia


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 Post subject: Re: Exercise
PostPosted: Mon Jul 06, 2009 5:34 pm 
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Baby Spoon

Joined: Sun Dec 10, 2006 8:16 pm
Posts: 327
I also recommend isometric exercise. A doctor I see thinks of it as a miracle cure for EDS. While I scoff at that, I find it very convenient and relatively safe.

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"In your hearts, you know he's right."


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 Post subject: Re: Exercise
PostPosted: Tue Jul 07, 2009 3:59 am 
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Message Board Host
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There are basic strengthening exercises you can do at home and strapping can help too - that will help with whatever exercise you then do.

I would avoid step machines and rowing machines (too much stress on the knees). Personally I find elliptical machines great as they're low impact and you don't take any joints to acute degrees. Treadmills are great for walking but I'd be cautious of running. And maybe try a bike and see how you do.

Going to a regular gym where you can decide exactly what to do, rather than Curves where it's circuit based, may be more suitable. Most gyms will let you book one session with a trainer to work out what to do and use and how. I highly recommend doing this as with EDS you're more at risk of injuries from incorrectly using equipment.

If you do weight based exercises, make sure that you use relatively low weights and do more reps, ensuring that you do not take joints to acute degrees - e.g. a bicep "curl" becomes an exercise where you hold you arm to your arm and move the hand holding the weight only a few inches rather than lifting it up so that the elbow joint is 90 degrees or less.

Hope that helps!

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Linz

Fibro, Hyperlordosis, HMS and accompanying baggage


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 Post subject: Re: Exercise
PostPosted: Tue Jul 07, 2009 6:10 am 
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Spoonie in Training

Joined: Mon Jul 06, 2009 10:05 am
Posts: 240
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I have a pack of Yoga cards and Stretch cards, which I used on a pain management program I was at. They are good because you can do as little as you like, modify if neccesary, and they say what part of the body they work on. You also don't have to go anywhere to use them! I don't know where you'd buy them now though - maybe amazon? Somewhere should have something similar if not the same set...Good luck with finding exercise that suits you!

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I'm Phoebe, I have EDS and Hypermobility, but apparently I'm typed as Classical. I'm also dispraxic - New Years Resolution is to be more organised! I'm 20 and in my second year at Drama School, which has been the biggest test of my disability so far.


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