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ricecrispy
Spoonie in Training
Joined: Tue Jun 27, 2006 7:01 pm Posts: 190 Location: High Shoals, NC
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 Photo Diary
I was wondering if anyone has made a photo diary of your EDS issues. Most of the time when I see a dr I have a hard time explaining exactly what a joint did, or reproducing it. They look at the joints and/or xrays and say that it looks normal and there isn't a reason for it to be hurting. Also it might help me to learn the difference between whats normal and whats EDS.
_________________ DX: EDS Type 3 and all his friends and some yet to be determined, I'm gimpstatic.
Did anyone catch the license plate of that truck that ran over me last night?
I wonder if a life lost is worse then a life never lived, I grieve what was lost and fear what is to come.
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| Sat Dec 20, 2008 10:46 pm |
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queenslug
Dessert Spoon
Joined: Wed Oct 17, 2007 1:44 pm Posts: 549
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 Re: Photo Diary
There is a sticky at the top of this section. I don't know if you are looking for accidental things or intentional things. I can do this to my hand & it's an intentional thing. My fingers accidentally can be moved much, much further that this, but I don't have a camera pointed at them & I usually worry more about getting them comfortable rather than documenting. So, if the sticky at the top doesn't help, what sort of pictures would you be looking for?
_________________ dx'ed: EDS III, OA, Neuropathy, Poland's Syndrome, Migraines, Kidney Stones, MVP & Asthma
The Queen's Adventures

Last edited by queenslug on Sun Dec 21, 2008 7:08 pm, edited 1 time in total.
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| Sun Dec 21, 2008 11:09 am |
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ricecrispy
Spoonie in Training
Joined: Tue Jun 27, 2006 7:01 pm Posts: 190 Location: High Shoals, NC
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 Re: Photo Diary
It isn't that I'm looking for pictures entirely, it is more that I want to document the strange things that my body does. Then I can take the picture and ask if something is normal, or atleast explain why something hurts the way it does. There is also the fact that it takes time to get to an appointment, and by then swelling or bruising my not appear as bad as it was or even be gone by that time. I don't intend to make a catalog of my tricks, more so my problems.
_________________ DX: EDS Type 3 and all his friends and some yet to be determined, I'm gimpstatic.
Did anyone catch the license plate of that truck that ran over me last night?
I wonder if a life lost is worse then a life never lived, I grieve what was lost and fear what is to come.
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| Sun Dec 21, 2008 6:04 pm |
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queenslug
Dessert Spoon
Joined: Wed Oct 17, 2007 1:44 pm Posts: 549
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 Re: Photo Diary
Ah, ok that makes more sense. I just tell my doc what happened, I've never brought him pictures of anything. Thus far I am lucky in that about 90% of my issues I can just treat myself so I don't need to see him for a specific event. Maybe someone else has done that, I wouldn't be too surprised if someone has.
_________________ dx'ed: EDS III, OA, Neuropathy, Poland's Syndrome, Migraines, Kidney Stones, MVP & Asthma
The Queen's Adventures

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| Sun Dec 21, 2008 7:12 pm |
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