I was wondering if anyone has made a photo diary of your EDS issues. Most of the time when I see a dr I have a hard time explaining exactly what a joint did, or reproducing it. They look at the joints and/or xrays and say that it looks normal and there isn't a reason for it to be hurting. Also it might help me to learn the difference between whats normal and whats EDS.

There is a sticky at the top of this section. I don't know if you are looking for accidental things or intentional things. I can do this to my hand & it's an intentional thing.
My fingers accidentally can be moved much, much further that this, but I don't have a camera pointed at them & I usually worry more about getting them comfortable rather than documenting. So, if the sticky at the top doesn't help, what sort of pictures would you be looking for?

It isn't that I'm looking for pictures entirely, it is more that I want to document the strange things that my body does. Then I can take the picture and ask if something is normal, or atleast explain why something hurts the way it does. There is also the fact that it takes time to get to an appointment, and by then swelling or bruising my not appear as bad as it was or even be gone by that time. I don't intend to make a catalog of my tricks, more so my problems.

Ah, ok that makes more sense. I just tell my doc what happened, I've never brought him pictures of anything. Thus far I am lucky in that about 90% of my issues I can just treat myself so I don't need to see him for a specific event. Maybe someone else has done that, I wouldn't be too surprised if someone has.