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Asahinasan
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Post subject: I'm officially Diagnosed  Posted: Tue Nov 25, 2008 11:58 am |
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| Spoonie in Training |
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Joined: Wed Mar 05, 2008 12:25 am
Posts: 195
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Ok so I'm officially diagnosed as H-EDS, my rhumey saw all my funny joints, and saw where I dislocated my knees, and wrists, and all the small little places that I do... and that I score a 9 on the beighton scale... so I'm officially a bendy...
he said that since I'm pg not much can be done right now, but pp I am to go back under pain management care, and back to pt to keep my joints nice a strong...
he said unless my knees get really bad, I wont need OT for a while...
So there ya go...
he also thinks I'm going to end up with a Lupus diagnosis as well, but my ANA is still low/negative, so were ok on that front for the time being...
_________________
-Teri-
DX: APS; Pleuresy; Genetic Triad, H-EDS, Hashi-Thyroid, Allergic to almost everything; Migraines, Photosensitivity, Latent CMV,
Currently on Lovenox, BA, and Prenatals
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eri
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Post subject: Re: I'm officially Diagnosed Posted: Tue Nov 25, 2008 2:02 pm |
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| Volunteer Staff Member |
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Joined: Fri Sep 01, 2006 10:52 am
Posts: 2150
Location: FL, USA
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congrats! *hugs*
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dx: spastic cerebral palsy, retinopathy of prematurity, fibromyalgia, lordosis, small fiber neuropathy, osteopenia, gastroparesis
"i have measured out my life with coffee spoons."--t.s. elliot
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Jilly
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Post subject: Re: I'm officially Diagnosed Posted: Tue Nov 25, 2008 2:11 pm |
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| Baby Spoon |
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Joined: Sun Apr 13, 2008 2:51 pm
Posts: 357
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Ehlers Danlos Syndrome, Classic Type
Postural Tachycardia Syndrome
Myofascial Pain Syndrome
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ReineDeLaSeine14
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Post subject: Re: I'm officially Diagnosed Posted: Tue Nov 25, 2008 2:13 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9105
Location: Connecticut...part-time Texan...and French at heart :)
Blog: View Blog (1)
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Welcome to the EDS/AI disease mess...
<3 My mom and I both have EDS and AIs so feel free to contact me if you want to talk about it.
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks 
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Asahinasan
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Post subject: Re: I'm officially Diagnosed Posted: Tue Nov 25, 2008 3:25 pm |
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| Spoonie in Training |
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Joined: Wed Mar 05, 2008 12:25 am
Posts: 195
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Thanks for ya'lls replys and spoons... right now I really need them! I am so tired all the time because of this pg... I really can barely function... and I'm not on any of my pain meds, but I'm thinking that I wont be able to tough it out once the second trimester hits and the risk of issues is lessened that I might start them back up again to get some comfort for at least some of this pregnancy!!
_________________
-Teri-
DX: APS; Pleuresy; Genetic Triad, H-EDS, Hashi-Thyroid, Allergic to almost everything; Migraines, Photosensitivity, Latent CMV,
Currently on Lovenox, BA, and Prenatals
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