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Assessment shows that Im an utter mess...
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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 Assessment shows that I'm an utter mess... I went to the brace clinic today... NOTHING...I mean NONE of the braces I own properly fit me...whether they were OTC or Rxed...NONE of them. Also...they aren't supportive enough. Once again NONE of them. The physiatrist actually told me my right knee would need surgery if it were even possible for me to HAVE surgery. I have to go back next Monday for my knees/ankles...then I head off to the OT for fingers/hands/wrists. Congrats Stephanie...you are now an official Medical Basketcase  Snarflepuss.
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks 
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| Mon Nov 24, 2008 3:42 pm |
 
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eri
Volunteer Staff Member
Joined: Fri Sep 01, 2006 10:52 am
Posts: 2195
Location: FL, USA
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Re: Assessment shows that I'm an utter mess... are you able to get new ones? *hugs*
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dx: spastic cerebral palsy, retinopathy of prematurity, fibromyalgia, lordosis, small fiber neuropathy, osteopenia, gastroparesis
"i have measured out my life with coffee spoons."--t.s. elliot
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| Mon Nov 24, 2008 3:47 pm |
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LindaK
Message Board Admin
Joined: Sun Jul 03, 2005 5:15 pm
Posts: 6657
Location: Adelphi Md
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Re: Assessment shows that I'm an utter mess... And this is news? We knew you were a mess steph!  Well, you are young yet and I'm sure these things get out of alighnment and you grow etc. But this means bright shiny new hardware is coming? Let us know about your next appts. You know the problem with you eds'ers - no one can hug you properly! linda
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Autoimmune Hepatitis, Hashimoto's, Joint pain and Fatigue
It is not good for all our wishes to be filled; through sickness we recognize the value of health; through evil, the value of good; through hunger, the value of food; through exertion, the value of rest.
-Greek saying
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| Mon Nov 24, 2008 4:43 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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Re: Assessment shows that I'm an utter mess... Linda...what do you mean GROW????? I haven't grown in EIGHT years!
Eri...I should have my ankles next week and probably me knees too...and I have no clue when OT's going to call me.
Now I'm just hoping all this crap is covered...my old insurance didn't cover anything and it was over $700 for my joint parts that don't even work right *le sigh*
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Mon Nov 24, 2008 9:01 pm |
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Jilly
Baby Spoon
Joined: Sun Apr 13, 2008 2:51 pm
Posts: 394
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Re: Assessment shows that I'm an utter mess... who fitted them in the first place?
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Ehlers Danlos Syndrome, Classic Type
Postural Tachycardia Syndrome
Myofascial Pain Syndrome
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| Tue Nov 25, 2008 2:11 pm |
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Etyrnity
Baby Spoon
Joined: Tue Mar 11, 2008 10:31 pm
Posts: 292
Location: Colorado
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Re: Assessment shows that I'm an utter mess... That stinks, I can't get any pre-made braces to fit me either. Even my silver ring splints don't really fit that well. Oh well maybe we are just cool and anomalous.
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EDS (geneticists baffled), bladder injury/non-functional, unnamed autoimmune disorder, asthma, allergies, hemiplegic migraines, adrenal insufficiency, some type of brain abnormality that couldn't be identified by the radiologist and was ignored by Dr.
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| Tue Nov 25, 2008 5:14 pm |
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