Hi everyone,
I was just kinda/sorta diagnosed with Benign Joint Hypermobility, again a rheumatologist who says I have the Brighton score for it, but doesn't really want to diagnose it. I'm just curious about another symptom I have. If I sit on my knees, I have to be careful how I stand up, because if they go out to the side, the top of my fibula will dislocate and then I have to straighten my leg to pop it back in. Does this happen to anyone else? If so, is it a Hypermobility thing or an EDS thing? Thanks

Hi there megan here . yes that happens to me all the time

Yeah it's both a hypermobility thing and an EDS thing.

My hypermobile friends are more prone to slipping things out of place from time to time but not like me A lot of teens (esp. girls) have sliding kneecaps.

Usually PT helps reduce the occurrence of it...then a knee brace would be considered if the PT didn't do the trick.

I don't understand why your doc wouldn't diagnose BJHS...as far as insurance goes it causes NO trouble...it's EDS that makes them mad...

Steph is correct.

I too don't understand why your doc doesn't want to diagnose you...do you know why??

I have that allllll the time.. i hate it because i love sitting like that..

But from what i read is hypermobility syndrome is a type of eds. That is what i keep seeing.

Mhmm Hypermobility EDS (Type III) is now believed to be the same thing as HMS