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Dymphna10
Spoonie in Training
Joined: Sun Jan 27, 2008 12:12 pm
Posts: 20
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 Quick question Hi everyone,
I was just kinda/sorta diagnosed with Benign Joint Hypermobility, again a rheumatologist who says I have the Brighton score for it, but doesn't really want to diagnose it. I'm just curious about another symptom I have. If I sit on my knees, I have to be careful how I stand up, because if they go out to the side, the top of my fibula will dislocate and then I have to straighten my leg to pop it back in. Does this happen to anyone else? If so, is it a Hypermobility thing or an EDS thing? Thanks
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RSD and now maybe more...off to the rheumatologist
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| Sat Mar 15, 2008 11:27 am |
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EDSGIRL021
Spoonie in Training
Joined: Sat Mar 15, 2008 4:23 pm
Posts: 1
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Re: Quick question Hi there megan here . yes that happens to me all the time
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| Sat Mar 15, 2008 4:34 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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Re: Quick question Yeah it's both a hypermobility thing and an EDS thing. My hypermobile friends are more prone to slipping things out of place from time to time but not like me  A lot of teens (esp. girls) have sliding kneecaps. Usually PT helps reduce the occurrence of it...then a knee brace would be considered if the PT didn't do the trick. I don't understand why your doc wouldn't diagnose BJHS...as far as insurance goes it causes NO trouble...it's EDS that makes them mad...
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks 
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| Sat Mar 15, 2008 5:02 pm |
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TheDysautonomiaGirl
Message Board Host
Joined: Sat Jan 07, 2006 5:18 pm
Posts: 6372
Location: Pennsylvania
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Re: Quick question Steph is correct.
I too don't understand why your doc doesn't want to diagnose you...do you know why??
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Gwendolyn
~21~
POTS & NCS, Ehlers- Danlos Syndrome (Hypermobility & Classical), CFS, GERD, Fibromyalgia, Gastroparisis, Costochondritis, Pelvic Floor Spasms, Type II Diabetes, & Hypothyroid
"Be pushed by your dreams, not held back by your illness!" -Me 
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| Sat Mar 15, 2008 6:33 pm |
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cinabonspice
Spoonie in Training
Joined: Wed Feb 20, 2008 2:36 am
Posts: 80
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Re: Quick question I have that allllll the time.. i hate it because i love sitting like that..
But from what i read is hypermobility syndrome is a type of eds. That is what i keep seeing.
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| Thu Mar 20, 2008 5:48 am |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm
Posts: 9262
Location: Connecticut...part-time Texan...and French at heart :)
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Re: Quick question Mhmm Hypermobility EDS (Type III) is now believed to be the same thing as HMS
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~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA)
Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Sat Mar 29, 2008 6:16 pm |
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