August 10, 2008Spoon tote bags from Target!Everyone keeps asking me where I get my spoon tote bags. Well I have received many as gifts from other "spoonies". But they we bought at target! I am so excited because now they are available online!!! yay! Get yours today!
August 06, 2008Katie Janes doesn't "Look Sick" either!? :)Thanks to Kerri at SUM for passing on this video. This girl Kerri rocks! (literally) She has an amazing attitude and voice! Continue reading "Katie Janes doesn't "Look Sick" either!? :)" » June 27, 2008fibroaction.orgHI Guys, I was just interviewed for a fibro organization in the United Kingdom called fibroaction.org. I thought you might find it interesting. May 18, 2008Vote for Annie and Tom on the Today Show!Annie and Tom from Chicago, Illinois are one of five couples competing in the NBC TODAY Show's annual "Race to the Altar." Your vote today can help Annie and Tom get married live on the show in June. Annie was diagnosed with lupus when she was 17. After she was diagnosed, Annie feared that no one would ever be able to love her completely for who she was as a person. Yet it was her chronic disease that gave Annie an inner strength and drive to succeed, all qualities that to this day Tom constantly admires about her. Help Annie and Tom be selected as this year’s TODAY Show wedding couple by voting for Annie and Tom. The deadline for this round of voting is 12 p.m. Eastern Time this coming Monday, May 19. Vote for Annie and Tom: Read their profile page: Visit Annie and Tom’s webpage: View all of the couples competing in the TODAY Show's "Race to the Altar:" May 13, 2008May 12th Lupus featured on NBC Nightly NewsOn May 12th, 2008, NBC’s Robert Bazell follows one woman’s struggle with Lupus in NBC’s Nightly News Medical Mysteries series. View video here. Did you see the show? May 12, 2008Happy Fibromyalgia Awareness Day!Happy Fibromyalgia Awareness Day! I have fibro and so do so many of the readers at butyoudontlooksick.com. Use this day to spread awareness and give some extra love to the fibros in your life! May 08, 2008Connecting on the web!Does anyone use Twitter? myspace? Facebook? Stumbleupon...etc? Just a quick note to say that I have met some great people and have re-connected with some old freinds using these services. In case we haven't connected lately on these services, Here is a link to where I am on all of these: http://www.butyoudontlooksick.com/2008/04/butyoudontlooksickcom_on_the_w.php#more please add me! Thanks! April 19, 2008New "Warning: Fibro Fog" shirts and giftsCool Contest from our friends at Olivekids.com
Our friends at Olivekids.com is sponsoring a contest in celebration of their 10th birthdayWe're talking good prizes too! Grand Prize It's simple to enter (even a ten year old could). Click here to get to the entry form, answer a few simple questions and, voila, you're all set - no purchase necessary (although we would appreciate it). Entries must be received no later than 11:59 p.m. PT on June 30, 2008. Good luck and hope you win! March 08, 2008Daylight Savings TimeA friendly reminder: This Sunday, March 9 marks the beginning of Daylight Savings Time. Remember to "spring forward" by setting your clocks ahead 1 hour. February 15, 2008a new Grand Rounds- Valentine's edition!Check out the latest edition of GR at: February 06, 2008Grand Rounds, Vol. 4, No. 20: The Health 2.0 ExplosionKudos to our friend Amy at diabetesmine for hosting Grand Rounds this week. I couldn't agree with her more on technology/ health being a very important topic in the coming elections. Here is an excerpt from her post: Happy Super Tuesday! Whether or not you live in one of the 24 states that cast their votes today, you probably agree that healthcare will be one of the major opportunities –- and major challenges -– for the next White House. Now for the first time in history, policy makers are facing a more outspoken, more organized medical and patient constituency than ever, due to the emergence of social media on the Internet, aka Health 2.0.Check it out here: December 31, 2007Please consider writing in to Lupus Now about butyoudontlooksick.comI just received this notice from Lupus Now Magazine. Please consider writing in to Lupus Now about our online magazine butyoudontlooksick.com Please pass this on to whomever else you think would be interested in nominating us. Thank you.
In the "Opining Online" column in the Summer 2008 issue of Lupus Now, we want to print your answers to this question: "What Website inspires you?" Email your response to LupusNow@lupus.org. Make sure your answer is 50 words or less. Please include your first name and last name in the email, and write "Website inspiration" in the subject line of your email. We'll print as many of the responses as we can. Your deadline is February 15!
-Christine November 15, 2007Shopping through Amazon.com helps butyoudontlooksick.comShop and help support this site at the same time!! With the holidays and christmas shopping.....Just a reminder that if you shop through amazon.com please shop/click using this link:
Please save this post to come back and click through..... :) November 08, 2007Do you Like Word Seaches and Crossword Puzzles?Do you Like Word Seaches and Crossword Puzzles? I just found this website that makes it so super easy to make those word games for any topic, party or theme. It literally takes maybe 3 minutes. You fill in the blanks with the words you want to include, check off a few style question and difficulty of puzzle, and voila! A computer program makes it up for you and it is ready to print and save. Voila! A perfect, custom addition to any party or event. Granted I just used this to give the kids coming to a family party something to do, but I can see this having a bigger use for school teachers with diffiuclt/ borning subjects. For "awareness" campaigns.. like a lupus word search. For support groups etc. It is a fun easy way to break the ice, start conversations/ mingling and bring up certain words or topics. I just had to share. :) Click here: Thanks Lisa Anne! October 30, 2007Anger ManagementI have been feeling very angry lately. Angry that I do not have the energy I want to have to take care of my beautiful baby girl. The exhaustion and pain make even showering a torturous task. I know and hop this is just a phase. I know life isn't fair. I am a big girl-- but boy , does it make me angry! -Christine
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