Comments on: Post-Polio Syndrome, A New Condition for an Old Disease

By: Elena

Elena — Sat, 07 Aug 2010 06:22:42 +0000

Wow. Deedra’s comment struck a chord! My father also had polio, and I have been plagued with autoimmune diseases and other inexplicable health issues that are typically thought of as idiopathic – severe Scoliosis, for one – all my life. My autoimmune disease was originally diagnosed as Sjogren’s Syndrome, but recently, the diagnosis was broadened to include newly found AI markers for Lupus and Reynaud’s Phenomenon and now my official diagnosis is: Mixed Connective Tissue Disease. I would love to hear feedback on Deedra’s/my question from anyone who might either have further info, or a suggestion where I might find some.

By: Laura Miller

Laura Miller — Sun, 14 Mar 2010 03:34:01 +0000

I have Post Polio Syndrome, or PPS as others call it. I came down with Polio in 1953. It is not well know because of everyone believes polio is not around anymore. You can still come down with polio and also find out you have pps. Most doctors who do not know very much about the problem have missed it thinking it is MS. I have a group on Facebook “Polio is still around…help support people with it…polio and post polio”. We are a group that shares our problems and our good times with pps. We also have many people who are supports. They have friends, co-workers or family members that have polio or pps. Drop by and say hello.
Laura

By: Fiona

Fiona — Sat, 13 Mar 2010 00:26:17 +0000

The estimate for PPS is probably low, since, as the article pointed out, not many doctors know about polio or PPS. Add to that the two types of polio – paralytic and non-paralytic – and you have a fairly large number of older people who actually had non-paralytic polio and but were not diagnosed with polio. No diagnosis of polio means PPS isn’t even considered when patients present with wide ranging symptoms.

By: Missy Oakley

Missy Oakley — Tue, 09 Mar 2010 00:39:24 +0000

I didn’t realize that there were many survivors. I wish you well in finding the support and care you all need

By: Deedra

Deedra — Mon, 08 Mar 2010 14:39:38 +0000

I have been wondering if there is a link between people who have had polio and their children that have autoimmune disease.My father had polio as a youth.He lost then regained use of his right arm.I have had muscle problems since being a teen and am diagnosed w/Fibromyalgia,Lupus and MCTD.