ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and features a collection of articles, personal stories, book and product reviews, health resources and an active message board for the disabled, or those living with chronic pain or illness.
36 Easy things that you can do to make the life of your chronically ill friend a bit better.
You do not need to spend a lot of money. You can be thoughtful in so many ways. The point is to do something, and do something today. I have listed below 36 easy ideas that anyone would appreciate. Sometimes it is hard for a patient to ask for help. Just do it!
The hardest thing about chronic disease is that is is chronic. I had a friend who had a really bad flu and she received flowers that very week. With me – since I am sick all the time… I get nothing. Am I any less sick, sad, frustrated, lonely, or bored. NO, I need your love and support now more than ever. When everyone else forgets that I am still in this struggle with my illness….. please remember. It didn’t go away, I didn’t forget. I need you to be my friend.
Television: Christine Donato, board member of the Lupus Alliance of America, is featured in a recent edition of Legislative Report with Senator Kemp Hannon
Christine Donato, board member of the Lupus Alliance of America, is featured in a recent edition of Legislative Report with Senator Kemp Hannon (R-NY) to promote Lupus Awareness Month. In the interview is also JoAnn Quinn the executive director of the Lupus Alliance, Long Island/ Queens affiliate. It was a wonderful experience and I was honored to be chosen to be apart of the interview. The interview can be seen below. Please note that the interview had to be saved in 2 halves, so you will need to view both videos to see the entire show.
This Spring Christine had the opportunity to participate in a local PSA (Public Service Announcement) for cable teleivision for the Lupus Alliance of America- Long Island/ Queens Affiliate. Christine is in the center back row. There are 2 spots airing currently. The first spot is 30 sec. and the 2nd video spot is a minute. Feel free to help spread Lupus Awareness by sharing the videos with your friends, family, or by sharing on your social networks like twitter, facebook, myspace or your personal blogs.
Facebook, Twitter, and MySpace Oh My! ButYouDontLookSick.com on the web!
We love being connected with our readers! Since we have added those "handy dandy" features at the bottom of every article, we have noticed our readers have shared our articles, posted them on their personal profiles and more. We can not thank you enough for sharing this site with your friends and family. Even though we hope you come to ButYouDontLookSick.com every day for our new articles and tips.. we know there are other places on the web where you guys like to hang out. Social Networking is more and more popular and we like to stay connected! We can use technology as a tool to help each other and build a community.
This author has had Multiple Sclerosis for more than 20 years. The main character in her book is just finding out that she has disease and the effects of the disease impact her life. She can no longer do the job as well as she used to be able to. And it’s changing her personal life, too.
Anyone who has fatigue, pain, body parts that don’t work or other things that hold you back will be able to relate to this story.
I remember going to the bright lights of Atlantic City and watching people play roulette. I would just walk around and watch people. I liked to watch the “high rollers” because they seemed so carefree with amounts of money that would make me sick, if I lost. For a moment, I would love to be able to be one of them and not have a care in the world, and be able to bet freely. I stayed long enough to watch the same older man, win big.
People were cheering for him, as he bet black. He looked like luck was on his side that night, but then he just broke even, no cheers that time, but no big disappointments either, he was safe. Just as I was about to walk away I watched as he lost it all. He looked frustrated and even a little mad, but he continued to play anyway. In a matter of minutes I saw such a wide spectrum of luck and emotion. I laughed to myself knowing I couldn’t even afford to play. I walked away and never forgot thinking “that is my life… a roulette wheel. I never know what I'll wake up to, what I can do, or how I am going to feel.” It’s all a risk, an unknown.
HELP! I've Been Working Out Like Crazy, Eating Right and STILL Can't Lose Weight
A Do-Now, 4-Step Guide to Kick Starting Summer Weight Loss by Wendy Chant, Author of Conquer the Fat-Loss Code
Few things in this life are as frustrating as working hard to look better, firm up or slim down and, after a few weeks -- or a few months -- of eating right and exercising STILL having nothing to show for it! But take heart; often it's just the few, simple things we do to "kick start" our program that can make all the difference.
Book Review: Flying for Peanuts The ABCs of Flying Southwest Airlines by Marty Thompson
Have you ever flown on Southwest before? If you have, you will certainly be able to relate to the situations Marty Thompson points out in his humorous look at the airlines.
It has always reminded me of a cattle car. I feel like I should “moo” when I’m getting on. There is never enough space for two people to share an armrest. Sitting on the emergency exit aisle is best, but EVERYONE knows that. Getting there early does mean better seating, but it’s no guarantee.
Marty walks through each of these marvelous experiences and offers you tips. Most are just tongue-in-cheek, but some are valid. Can you figure out which?
Leslie Hunt talks Lyrics, Life, and Lupus with ButYouDontLookSick.com
May is Lupus Awareness Month! How Will You Spread Awareness?
Leslie Hunt talks Lyrics, Life, and Lupus with ButYouDontLookSick.com
Leslie Hunt has been performing as a musician since childhood. By the age of thirteen, Leslie had starred in productions of “Fiddler on the Roof” and “Music Man” and performed on stage with Kenny Rogers. You may remember Leslie from American Idol Season 6 (2007), but you may not know that at the age of seven, Leslie was diagnosed with Lupus SLE .
Christine Miserandino, a fellow Lupus patient, member of the Lupus Alliance of America Board of Directors, and founder of ButYouDontLookSick.com, was eager to interview Leslie and learn more about this bright young woman who lives life to the fullest and refuses to let Lupus stop her from achieving her goals.
What began as an interview soon felt like a discussion between two old friends.
May is Lupus Awareness Month! How Will You Spread Awareness?
My daughter Christine has a tee shirt with the above logo emblazened on it, and I have always disliked the crudeness of that phrase. Every time she wore that shirt I would wince and tell her how I hated that expression, but she would just laugh and smile an all knowing Mona Lisa smile. Well she has finally won me over to the dark side.
