ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of:
But you don't look sick?
 
ButYouDontLookSick.com Features:
 Message Boards | Online Store | Mailing List
Sponsored Links:
NaturalPoint
Sponsored Links:
Forget Me Never Solutions - Personal and Business Invitations, Reminders and Greetings
How to fight Lupus with Lupus diet and alternative therapies
Improve the Quality of Life One Endeavour at a Time
Personalized Baby Clothing and Toddler Clothing at Adorable Baby Clothing
DreamAid Products
Please use the toolbar to the left to view articles by category, or use the search box above. Our most recent entries are below.

ButYouDontLookSick.com on the web!

We love being connected with our readers! Since we have added those "handy dandy" features at the bottom of every article, we have noticed our readers have shared our articles, posted them on their personal profiles and more. We can not thank you enough for sharing this site with your friends and family. Even though we hope you come to ButYouDontLookSick.com every day for our new articles and tips.. we know there are other places on the web where you guys like to hang out. Social Networking is more and more popular and we like to stay connected! We can use technology as a tool to help each other and build a community.

Continue reading "ButYouDontLookSick.com on the web!" »


A Husband's Perspective - Lupus Advocacy Day - Washington, DC

I am proud of my wife, Christine. I am proud of the work she does for the Lupus Alliance, this website, and for our family. I am proud of her passion to help others, and the impact she has had on so many people through her speaking engagements, and of course, through ButYouDontLookSick.com.

I had the pleasure of joining Christine and the Lupus Alliance on a recent trip to Washington DC, to promote Lupus awareness and lobby for the support of local congressional representatives. We decided to bring our seven month old daughter, Olivia, and my role was to care for her during the trip so that Christine could fully participate in the Advocacy Day activities. This included training sessions, lectures, and individual meetings with congressional representatives Carolyn McCarthy (D, New York) and Peter King (R, New York).

Continue reading "A Husband's Perspective - Lupus Advocacy Day - Washington, DC" »


Get Well Gifts from The ButYouDontLookSick.com Store

Have you made a New Years Resolution to not let Lupus get you down? How about a Tee shirt that reads ‘I am Stronger than Lupus!’? Looking for the right thing to say to those who tell you that you are always tired? We think a T-shirt that says ‘I am Too Tired To Argue With You’ or ‘I am Not Lazy, I have Fibromyalgia. What is your excuse?’ will get them to politely keep their comments to themselves! For these items and more look no further then the Butyoudontlooksick.com online store. Offering New apparel and merchandise designs with a twist, the ButYouDontLookSick.com online store will bring a smile to any patient suffering from Lupus, Cancer, Cystic Fibrosis, or Arthritis, to name a few.

Save money with these coupons!!!!

Save $5 off $40
use the code SRV320 at checkout
Expires 3/21

FREE SHIPPING* with orders over $50
use the code SHIP0318
expires 3/20
*free standard or economy only

Save $5 When You Spend $50 Or More!
Use Coupon Code: DUSTYTENURE (Expires: Mar 25, 2008)

Continue reading "Get Well Gifts from The ButYouDontLookSick.com Store" »


Christine is being honored at the Lupus Alliance Lupus Gala Brunch

Save the Date!

I am extremely proud to announce that my family and I will be honored at this year's Lupus Gala Brunch! We are so excited and hope to see everyone there. The Lupus Alliance is a wonderful organization that is very close to our hearts. We try and support the Lupus Alliance as much as possible throughout the year.


Continue reading "Christine is being honored at the Lupus Alliance Lupus Gala Brunch" »


Christine has been interviewed for today's CNN.com "empowered patient" column.

Empowered Patient, a regular feature from CNN Medical News correspondent Elizabeth Cohen, helps put you in the driver's seat when it comes to health care. This week's topic asks the question, "Are you an obnoxious patient?".

Christine was quoted in tips # 3, 4 and 5! Ms. Cohen was easy to speak with and it was a pleasure to work with her. I hope to again in the future as patient advocacy and empowerment is something I feel so strongly about.

Story Highlights
* Be an informed, confident patient, but also listen to your doctor's view

* Don't demand a prescription without an office visit

* Share, but don't overload, your doctor with info you've gathered independently

* If you need more than 15 minutes, make special arrangements beforehand


To read the whole story on CNN.com click here.

ButYouDontLookSick.com gets NEW upgrades!

We are always working hard to make our website the best it can be. Now we are better then before! You have been asking for some of these new features, and we have been listening! We are very proud to announce new upgrades and site features! If you have not been to our website lately - please come to check out some of these new exciting additions!

Continue reading "ButYouDontLookSick.com gets NEW upgrades!" »


About The Author

Christine Miserandino is a writer, blogger, speaker and patient advocate from NY. She also happens to be someone who is living with Lupus. Her writing has been featured in numerous newspapers, magazines, medical newsletters and television media.


From the age of fifteen, Christine Miserandino has been diagnosed with a myriad of illnesses from Chronic Fatigue Syndrome to Epstein Barr, and finally, many years later to a determination of Lupus. Though battling a shopping list of symptoms, Christine has consistently been told, by both well-wishers and doctors alike, “But you don't look sick.” as if that was some kind of compensation for being chronically ill. Many times, being pretty or not sickly looking, made it harder to validate an illness you cannot see.

Continue reading "About The Author" »


ButYouDontLookSick.com Disclosure Policy

Continue reading "ButYouDontLookSick.com Disclosure Policy" »


Walk Along for Lupus 2007

It is that time of year again!

My family, friends and I are walking in the annual Lupus Walk on Long Island, NY. This has been a family tradition that has meant allot to me through the years. The Lupus Alliance has helped me and my family throughout the years and this is our way of helping them continue their good work.

Continue reading "Walk Along for Lupus 2007" »


Christine Miserandino will be a featured speaker for Invisible Chronic Illness Awareness Week

Christine Miserandino, writer- butyoudontlooksick.com will be a featured speaker during the upcoming National Invisible Chronic Illness Awareness Week, September 10-16, 2007. National Invisible Chronic Illness Awareness Week, Sept 10-16, 2007 www.invisibleillness.com

Continue reading "Christine Miserandino will be a featured speaker for Invisible Chronic Illness Awareness Week" »


Happy 4 year anniversary Butyoudontlooksick.com!

Happy 4 year anniversary Butyoudontlooksick.com!

Hi Everyone,

I am proud to announce that butyoudontlooksick.com is celebrating it's 4 year anniversary! What an amazing 4 years this has been.

We have grown leaps and bounds! We started with just a few pages of content, and grew to have a newsletter, message boards, chat room and online store . Our website has now grown to an e-zine with new articles being published every day! We have members from around the world who have formed a close knit community of support and friendship. In the past year we have had the honor of being on television, featured in magazines, and newspapers and winning awards.

If you haven't visited us in a while- I encourage you to come and take a look! With new articles every day and with over 3,500 members talking on the message boards- there is always something new to discover.

With love and gratitude to the butyoudontlooksick.com readers for another amazing year,

-Christine

ButYouDontLookSick.com Mission Statement

Continue reading "ButYouDontLookSick.com Mission Statement" »


Television: Keeping Kids Healthy: Lupus A Medical Mystery - Featuring Christine Miserandino

See Christine's Latest television appearance.

Keeping Kids Healthy (PBS and American Public Television) Nationally Syndicated
Won a 2005 New York Emmy Award (11/ 2005) re-aired (2/ 2006, 3/ 2006, 6/2006)
EPISODE 401 - Lupus: A Medical Mystery
*Check your local listings for air dates and times.

What happens when you know your child is sick, but no one can tell you what's wrong...sometimes for years? Lupus, a debilitating disease, is still a medical mystery. Join Dr. Winnie King as we attempt to unravel this mystery on a full-show episode of Keeping Kids Healthy. Without a single known cause, no simple test for diagnosis and symptoms so vague and so varied, Lupus can often elude the doctors trying to detect it. But learning about Lupus is actually the first step in detecting it. You'll hear from a young woman, Christine Miserandino who lived with Lupus since she was 14 but wasn't diagnosed until 22;. Hear the story of how one mother refused to give up until her daughter's condition was diagnosed and hear a Lupus expert discuss symptoms, treatments, care and the latest news on medical advances in Lupus research.

Continue reading "Television: Keeping Kids Healthy: Lupus A Medical Mystery - Featuring Christine Miserandino" »


New Slogans, New Gifts and More at the ButYouDontLookSick.com store!

Contemplating what you should give a loved-one or close friend, suffering from a chronic illness this holiday season? How about a Tee-shirt that reads ‘Lupus Sucks’ or ‘Fibromyalgia Sucks' ? Or "Bad Flare Day!".  Look no further than the Butyoudontlooksick.com online store. Offering apparel and merchandise with a twist, the ButYouDontLookSick.com online store will bring a smile to any patient suffering rom Lupus, Cancer, Cystic Fibrosis, or Arthritis, just to name a few

Continue reading "New Slogans, New Gifts and More at the ButYouDontLookSick.com store!" »


Increase Your Website Traffic with Product Reviews at ButYouDontLookSick.com

Product Reviews are an excellent way to get the word out about a unique product or business. They work much like a testimonial, which we all know is a great promotional tool, but product reviews can actually be considered a "step up" from testimonials, since they go into more detail and are by far more personal.

Continue reading "Increase Your Website Traffic with Product Reviews at ButYouDontLookSick.com" »


Lupus Walk 2006

It is that time of year again!

My family, friends and I are walking in the annual Lupus Walk on Long
Island, NY. This has been a family tradition that has meant allot to me. Especially after the difficult time I had this winter with Lupus, we got to see first hand what this disease can do. I am thankful
that I am feeling better, but the incident made me even more dedicated to help those living with lupus live healthier, happier lives.

Continue reading "Lupus Walk 2006" »


ButYouDontLookSick.com Article Submission Guidelines

We are now accepting writing submissions in the folowing areas.

Continue reading "ButYouDontLookSick.com Article Submission Guidelines" »


But You Don't Look Sick Poem

This poem was submited by one of our readers/ message board members about our site. I know you will love it as much as we did.

Continue reading "But You Don't Look Sick Poem" »


ButYouDontLookSick.com Staff Writers

Our staff includes some of the most talented writers on the web. Take a few minutes, and allow us to introduce you to our wonderful staff:

Continue reading "ButYouDontLookSick.com Staff Writers" »


 

Sponsored Links:
Greenbaby Gifts Micah & Co Book Faerie


Sponsored Link:

New Research Reveals Use of Tart Cherries for Pain, Inflammation, and other
Health Conditions. For more information, click here.

                   

Disclaimer: The owners and authors of this site do not promote, support, or recommend any particular website, product, treatment or medication for any medical condition. No treatment should be undertaken without the supervision of a physician.

The entire contents of this web site are (c) 2003 -08 by Christine Miserandino and Butyoudontlooksick.com.
Our content may not be reproduced in any manner without written permission.
Please click here for our Privacy Policy