Lupus In The Media: Famous People Living with Lupus

Lupus is not a well known disease. It is one of the diseases that many people whisper about in fancy medical shows, but never really talk about until someone they know is diagnosed. When I was a child, I always wished more famous people admitted having lupus, to help bring some much needed awareness

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Product Review: NeilMed NasaFlo Neti Pot

Nasal hygiene isn't high on anyone's list of preferred topics. But for people with chronic illness, it can be important. Healthy sinuses can mean fewer infections, less congestion, or an end to dryness symptoms. When I was at the Mayo Clinic a year ago, I had a consultation with one of their ear, no

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Re-discovering your local library

I work part time in a public library on Long Island and boy have libraries changed. When my children were younger, the library was a wonderful place where we went to read and pick up books to take home. During the summer, they were excited to take part in a program called Reading is Fundamental, whe

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Crafts: How to make the Easter Egg Stockings!

Stockings don’t only have to be for Christmas time, we can stuff stockings full of candy all year round with these adorable Easter stockings! They’re a great alternative to Easter baskets, and a wonderful craft to make with the children in your life. Just be careful with the hot glue gun and sci

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Out of Hibernation- Thoughts on the Weather

I have been really enjoying this new summer weather. I love the warmth and sunshine- such a welcome relief from the dreary, gray days of winter. Although this seasonal metamorphosis happens every year, I can't help but be amazed at the changes. The days are longer and brighter and I can spend time

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Dyeing Easter Eggs the Natural Way!

When I was little my mother hated us to dye the eggs we would later be eating with the food dyes from the store. She claimed the food dyes would seep through the egg shell and we would be eating unnecessary chemicals. Therefore, dyeing Easter eggs wasn’t a huge pastime of my family’s. That is un

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The Spoon Theory written by Christine Miserandino

Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability.  Please note that this is in a PDF file due to copyright issues. Click HERE to read "The Spoon Theory" The Spoon Theory, written by Christine Miserandino

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Personal Essay: Your Lucky Charm

As St. Patrick’s Day rolls around, I find myself thinking of all the things I cannot do to celebrate this so-called “holiday”. Usually, I would still be here in Santa Barbara studying for a million finals, but I “lucked out”. I will be home this year. Sounds great, right? WRONG. All of my

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FREE Shipping on ANY size order from my Avon shop! (coupon just for “Spoonies”)

FREE shipping on ANY size order (even orders as low as $1) from my Avon shop! Just enter coupon code "FSANY". Why leave the house? You can order your basics like shampoo, conditioner, chapstick and sunblock. You can order a little something to cheer you up, or give as a gift. Order Easter or Spring

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Be an e-Advocate! New York State is considering two important pieces of legislation for people living with lupus.

If you live in NY state, there are two important pices of legistration that needs your support to pass. There is a very easy way to get involved. Just follow the directions below to send a letter to your representative. We even include a sample letter. It can not be any easier to get involved and be

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