ButYouDontLookSick.com magazine is about living life to the fullest with any disability, invisible disease, or chronic pain and hopes to provide answers to the endless questions of:
But you don't look sick?
 
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Poetry: Through the Eyes of a Mother

A poem about my mother witnessing my disability as it progresses.

Born "normal" and strong
Beneath the harmonious melody,
lies a discordant song
It lies in wait to strike
a river about to break its dike

Everyone thought "what a blessing!"
unseen wounds under a dressing

Walked at seven months of age
Another perfect page
in the book of life
soon to be filled with strife

A few years go by
Time to relax and sigh
Life is good,
nothing can go wrong
A time misunderstood

Filled with health and knowledge
Most certainly going to college
Get married, have little ones
Bask beneath the rays of God's sun

At five, the utopia crashes
Everything which once was flashes
Crumbling and falling apart
Tears of the heart
End of the lucky streak
Beginning of the oblique

Everything a false hope,
everything a lie,
learn to cope

Each day, weaker
Each day, bleaker

Muscles deteriorate
Progressively worsens
never abates

They think it can't get worse
but it does
unending like a curse

Each level a plateau
life deals another blow
nothing anyone can do

Desperate measures
a shining light but a smidgen
Put hope in religion
If all else fails,
God will help!
Alas, nothing but tall tales

Years go by and it's off to college!
The future might be good after all
SLAM! into another wall!
Cannot breathe and lose consciousness
Panic and stress!
Hurry call a neighbor!
No one there!
Call 911!
My son can't get air!
At the ceiling he just stares!
Perform CPR
Await the paramedics
Slowly the time goes tick, tick, tick
An eternity of uncertainty
no body under warranty

tt can't get worse
It just did!
Almost had to call a hearse

Watching him grow older
The future getting colder
A most certain fate of death
Deny it until his last breath


Poem written by John Gugie, © 2007 butyoudontlooksick.com

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