If you check the diagnosis codes, you will not find one listed for "Motivation Paralysis Disorder!" But I would be willing to bet that many of you with an invisible disease know exactly what I am talking about! It's that awful phase we can slip into where time seems to pass in dog-years. If you sa
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FOR IMMEDIATE RELEASE New York, NY—November, 23, 2005—Living with a chronic illness can be debilitating, but what if your chronic illness is ‘invisible?’ Spotting a person with Lupus or Chronic Fatigue can be next to impossible, let alone know what challenges a person who suffers from these
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When I think of silk pillowcases, I think of movie stars or models on television. I have heard many stories about silk pillowcases being great for your hair, and for a relaxing night's sleep and so I was very excited to try one. I had blown dried my hair straight the day I decided to use the pillo
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Press Contact: Christine Miserandino ButYouDontLookSick.com 516 343 9322 Christine@butyoudontlooksick.com FOR IMMEDIATE RELEASE Public Needs to Be “Spoon Fed”About Those With Invisible Disabilities Long Island, NY, October 31, 2005 – Christine Miserandino, of ButYouDontLookSick.com, is sched
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Book Two in the Magic Kingdom of Landover Series by Terry Brooks Ben Holiday, now safely ensconced as High Lord of Landover is in trouble again. This time he must overcome the magic of self-deception to save his himself, his friends and his kingdom and to uncover the mystery of the elusive Black
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Some simple ways to help Lupus Fundraising efforts as you shop! Order Flowers Through 1800FLOWERS.COM 1-800-FLOWERS.COM has teamed up with the Dorough Lupus Foundation, started by Howie D. of the Backstreet Boys in memory of his sister Caroline, to raise funds to fight this terrible affliction. Wh
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by Dene Danielle Hopkins I had the pleasure of reading this book about Dene and her experiences dealing with Lupus, since 1992. The book is quite short (59 pages) and was a quick read, so I was able to finish the book in one sitting. It was comforting to read about someone else's dealings with thi
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By: Michael J. Fox "If you were to rush into this room right now and announce that you had struck a deal– with God, Allah, Buddha, Christ, Krishna, Bill Gates, whomever–in which the ten years since my diagnosis could be magically taken away, traded in for ten more years as the person I was
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Because I have Lupus, I am extremely photosensitive. I burn easily and become very tired, weak and achy, when exposed to the sun. Most of the time, I tried to ignore my symptoms and just dealt with the consequences of being out in the sun. I didn't like the idea of what the sun's rays did to my bo
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By: Alice Peterson I have chosen to write about this book because as a young woman with Rheumatoid Arthritis it was a lifeline to know that other younger people had the disease too. The beauty of the book for me is that it is about the person with the R.A, rather than a book about possib
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There is a growing community of our readers who have been using twitter to connect. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory". I personally (Christine) use the twitter account so many times you will be hearing directly from me. :) The community is ...
More: Join us on Twitter @bydls and use the hastag #spoonie Over 5,500 followers can't be wrong!
Looking for a unique get well gift? Have you made a rule to not let Lupus get you down? How about a Tee shirt that reads ‘I am Stronger than Lupus!’? Looking for the right thing to say to those who tell you that you are always tired? We think ...
More: Get Well Gifts from The ButYouDontLookSick.com Store
How did you handle it? Did you choose to keep quiet and ignore it? Did you speak to that person or ask to speak to a manager? If you wrote a letter or said something- please share here in the comments section some of your wording. Many people can't find the ...
So, it is almost the end of February, and I think I am the last person to see this video/ commercial! I wish more awareness compaigns were this memorable. Everyone has been telling me to check out this video by the American Heart Association, Go Red for Woman. It is ...
More: February #GoRed for Woman Director's Cut of "Just a Little Heart Attack" Video with Elizabeth Banks
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...