Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

We have all heard the dreaded saying "But you don't look sick?" But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, hair done, and full

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How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

I hear it all the time from doctors and nurses: "Tell me your pain on a scale from 1 to 10". I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How can every patient from a broken leg, to a chemo

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What is the perfect gift to give, when you want to give the most memorable gift?

What is the perfect gift to give, when you want to give the most memorable gift?

My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video film: the kind

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I am Sick, NOT Stupid.

I am Sick, NOT Stupid.

Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p

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Painsomnia - Tick tock, tick tock, the clock keeps moving...

Painsomnia – Tick tock, tick tock, the clock keeps moving…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some

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Christine’s “Unbirthday Party”! – SAVE THE DATE!

Christine’s “Unbirthday Party”! The Purple Party Dinner Dance - September 7th - SAVE THE DATE! It is my birthday and I am throwing the party… but you get the dinner, dancing, cake, music,swag bags, gifts and prizes! The b

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No Rhyme or Reason. I have done all I can do.

No Rhyme or Reason. I have done all I can do.

What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was

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Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

Christine is on Twitter @bydls and if you use the hashtag #spoonie you can connect with over 8,600 followers!

  There is a growing community of our readers who have been using twitter to connect. These people are all fans of butyoudontlooksick.com and are all somehow connected to "The spoon theory".  I personally (Christine) use the twitter account so many times you will be hearing directly f

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Please Don't Ask My Dad About Lupus!

Please Don’t Ask My Dad About Lupus!

If you ask my dad about Lupus he will give you a very seemingly odd answer.  He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string.  

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I Never Thought I Would Use A Headset, Until I Tried The Jabra Extreme2 AE Extreme Noise Cancellation Headset

I Never Thought I Would Use A Headset, Until I Tried The Jabra Extreme2 AE Extreme Noise Cancellation Headset

At a conference I recently attended, I was given this headset to try out.  After my recent stroke and history of migraines I usually hate in ear buds, or headsets because they never seem comfortable or the noise sets me off.  I was willing to give this headset a fresh new try when I heard

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